NCT04581577已完成不适用
Perceptions of the Clinical and Psychosocial Impact of Covid-19 in Patients With Neuromuscular and Neurological Disorders
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 40
- 试验地点
- 1
- 主要终点
- Qualitative evaluation of the perceived clinical and psychosocial impact of the Covid-19 pandemic in patients with neuromuscular and neurological disorders
研究概览
简要总结
This study aims to evaluate perceived clinical and psychosocial experiences of patients and their families during the Covid-19 pandemic. it is important to understand the implications of the pandemic for this population, particularly given its likely protracted course, and resultant limitations to daily activities and clinical care. This will help clinicians plan support and adaptations to the services they provide in the medium to long term.
详细描述
As above
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 16 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Adult group
- •Patient over 16 years of age with a confirmed diagnosis of neuromuscular and/or neurological disorder
- •Able and willing to provide informed consent
- •Paediatric group
- •Parent of a patient under 16 years of age with a confirmed diagnosis of neuromuscular and/or neurological disorder
- •Able and willing to provide informed consent
排除标准
- •Unwilling for telephone questionnaire to be audio-recorded
结局指标
主要结局
Qualitative evaluation of the perceived clinical and psychosocial impact of the Covid-19 pandemic in patients with neuromuscular and neurological disorders
时间窗: 4 months
Evaluation of semi-structured questionnaires using thematic analysis
次要结局
- Qualitative evaluation of the social environment of patients with NMDs(4 months)
- Qualitative evaluation of the social activities of patients with NMDs(4 months)
- Qualitative evaluation of the professional activities of patients with NMDs(4 months)
- Qualitative evaluation of concerns regarding medical care from the perspective of patients with NMDs and their families during the Covid-19 pandemic(4 months)
- Qualitative evaluation of the impact of the Covid-19 pandemic on families of patients with neuromuscular and neurological disorders(4 months)
- Quantification of the proportion of patients with NMD who have had suspected or confirmed Covid-19 infection during the pandemic(4 months)
研究者
研究点 (1)
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