CovPall: Improving palliative care for people affected by the COVID-19 pandemic by sharing learning – the national and international response

Not Applicable

Completed

• Conditions: COVID-19 (SARS-CoV-2 infection), palliative and end of life care; Infections and Infestations

• Registration Number: ISRCTN16561225
• Lead Sponsor: King's College London

Brief Summary

2020 Preprint results in https://doi.org/10.1101/2020.10.29.20215996 non-peer-reviewed survey results on service innovation and practice change in preprint (added 19/03/2021) 2021 Results article in https://pubmed.ncbi.nlm.nih.gov/33556496/ survey results on challenges (added 19/03/2021) 2021 Funder report results in https://www.mariecurie.org.uk/globalassets/media/documents/policy/policy-publications/2021/better-end-of-life-research-report.pdf (added 24/11/2021) 2022 Results article in https://doi.org/10.1177/01410768221077366 (added 06/08/2024) 2021 Results article in https://doi.org/10.1177/02692163211000660 (added 06/08/2024) 2022 Results article in https://pubmed.ncbi.nlm.nih.gov/36210447/ Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (added 06/08/2024) 2022 Results article in https://doi.org/10.34172/ijhpm.2021.128 Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall) (added 06/08/2024) 2022 Results article in https://doi.org/10.1136/spcare-2022-003799 Symptom management in people dying with COVID-19: multinational observational study (added 06/08/2024)

Detailed Description

Not available

Study Timeline

• Study Start: 2020-07-27
• Study Completion: 2021-11-30
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 1030

Inclusion Criteria

WP1: Clinical leads of palliative and hospice care services including: palliative care teams in acute hospitals, in-patient hospices/palliative care wards and palliative care community services providing care in peoples own homes and supporting care homes, usually for adults and children.
WP2: Consecutive patients supported by the participating palliative care services in WP1 (including remote consultation), with clinically diagnosed and/or test confirmed COVID-19 diagnosis. This will include patients with and without pre-existing progressive conditions.

Exclusion Criteria

WP1: No lead or delegate available
WP2: Patients who are <18 years old

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
WP1. Innovations in services, workforce and volunteer deployment, and their impacts on care and bereavement services; identification of good practice, and sharing of approaches and knowledge. Change in practice, most effective treatments collected at baseline and 6-8 weeks later<br>WP2. Symptom and problem assessment measured using IPOS score at first assessment (baseline, T0), 24-hour follow-up, ideally twice, but this will depend on survival (T1, T2), and then at death or discharge (D or Di)

Secondary Outcome Measures

Name	Time	Method
There are no secondary outcome measures