A shared care approach for seriously ill cancer patients between general practice, discharge department and a specialist palliative care team

Not Applicable

Completed

• Conditions: Terminal cancer/palliative care; Cancer; Terminal cancer

• Registration Number: ISRCTN15273887
• Lead Sponsor: niversity of Aarhus (Denmark) - Research Unit for General Practice

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2007-12-05
• Study Completion: 2009-10-01
• Last Update Posted: 11 March 2019

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 270

Inclusion Criteria

Patients, who at the time of inclusion are diagnosed with incurable cancer, i.e. patients who require palliative care. The patients should also:
1. Be 18 years or older
2. Be able to speak and write Danish fluently
3. Give written and spoken consent
4. Be able to manage in their own home, with or without the help of carers and district nurses
5. Be informed about the diagnosis, also that it is incurable
6. Be registered as suffering from a terminal illness or fulfil the criteria for this

Exclusion Criteria

Patients are excluded if they:
1. Have a low level of cognitive skills, which makes it difficult for them to fill in a questionnaire
2. Are residents of a nursing home at the time of inclusion
3. Are receiving oncologic treatment which requires attending an out-patients clinic regularly
4. Already have established contact with a specialist palliative care team at the time of inclusion

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<br> 1. Patients wish for place of death and place of terminal care fulfilled: the patient will be asked about preference for place of death and place for terminal care at inclusion and a month later. At the time of death we will be able to establish:<br> 1.1. Where the patient died<br> 1.2. Where the patient spent most of the terminal phase using register based data and information from the GP<br> 2. Relative amount of time spent in hospital in the terminal phase: at the patients time of death we will be able to count number of days spent in hospital using the hospitals electronic patient files<br> 3. A subjective measure of the patients symptoms and quality of life (European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire of Palliative care [EORTC-QLQ-15-PAL]): this will be measured at the time of inclusion and a month later<br>