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Comparing the Stanford Letter Project Form to Traditional Advance Directives

Not Applicable
Recruiting
Conditions
Advance Directives
Palliative Care
Interventions
Other: Randomized clinical study
Registration Number
NCT02799537
Lead Sponsor
Stanford University
Brief Summary

Our goal is to compare two types of advance directives forms available in English and Spanish to determine which is more easy to use for patients.

Detailed Description

Step1: Any adult participant who is interested in completing advance directives and able to read and write in English and or Spanish will be eligible to participate in the study

Step 2:

Online Stanford consent form will be presented before the participants. Only after they read the consent and click on the participation link will they be able to enter the study.Those who are willing to participate will be randomly assigned to either the letter or traditional advance directives in Spanish and study measures. They will also answer questions as to how much they liked and understood the documents.

Step 4: The investigators will collect data until the investigators reach an n=1000

Step 5: The investigators will analyze the results and submit for publication.

In this protocol, we are assessing whether patients prefer the traditional advance directives or the letter directive. As it is just an questionnaire based study, there no risk for patients.

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
1000
Inclusion Criteria
  • Over 18 years of age
Exclusion Criteria
  • Under 18

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Arm && Interventions
GroupInterventionDescription
InterventionRandomized clinical studyParticipants in the intervention arm complete the Stanford letter advance directive
ControlRandomized clinical studyParticipants in the control arm complete the California state traditional advance directive
Primary Outcome Measures
NameTimeMethod
Ease of use of Questionnaire. more patient-centered and family oriented1year

It was easy to read and understand the form of advance directive .◦This is a feasibility trail. On completion of the advance directive they were assigned ( letter directive or traditional directive, we are asking questions to participants about whether the directive was clear and easy to understand).

Secondary Outcome Measures
NameTimeMethod
Ease of use about the type of treatment and care.1year

Advance form stimulated my own thinking about the type of treatment and care they wish to receive in my last days of life.

Ease of use about letting my doctors about my wishes.1 year

This form can help my doctors understand what treatments would like to receive and what not wish to receive in my last days of life ( resuscitation , respirators , artificial feeding , renal dialysis).

Ease of use of the form itself.1 year

I feel comfortable using form for advance care planning .

Ease of use and the comments participants may have.1 year

Any comments participants may have about the form of advance directive ? What can investigators do for patients and their families understand it better?

Ease of use if I cannot make decisions for myself then the form says it.1 year

In the future, if I can not make decisions for myself, this form will help my family / friends understand exactly what treatments ( resuscitation , respirators , artificial feeding , renal dialysis) would like to receive and what treatments do not wish to receive so they can make decisions medical for me.

Ease of use about my future preferences.1 year

There were issues with my future preferences that were not covered in the form of advance directive .

Ease of use to describe how decisions are made1year

Advance form helped me to describe how decisions are made

Trial Locations

Locations (1)

Stanford School of Medicine

🇺🇸

Stanford, California, United States

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