MedPath

Dementia Early Recognition and Response in Primary Care

Phase 2
Conditions
Dementia
Interventions
Other: Educational Dementia training
Registration Number
NCT00866099
Lead Sponsor
University College, London
Brief Summary

The purpose of this study is to develop and test an educational intervention for dementia in primary care, combining timely diagnosis, psychosocial support around the period of diagnosis and management concordant with guidelines.

Detailed Description

Dementia presents many challenges for primary care. Early diagnosis is important as this allows those with dementia and their family care networks to engage with support services and plan for the future. These actions can relieve the significant psychological distress that people with dementia and close supporters may experience , and provide knowledge about the availability of medical and psycho-social support that can improved functioning and morale

The main efforts to improve the identification and diagnosis of dementia should logically be targeted at primary care as this is the first point of contact for most individuals and their carers when faced with experiences of 'ill health'. There is, however, evidence that dementia remains under-detected and sub-optimally managed in general practice . An educational intervention that could enhance clinical practice, improving the skills of practitioners in the recognition of and response to dementia syndromes, could therefore be beneficial to people with dementia and their families, and potentially to health and social services.

Recruitment & Eligibility

Status
UNKNOWN
Sex
All
Target Recruitment
125
Inclusion Criteria
  • Patients with memory or other cognitive impairments suggestive of dementia syndrome
  • those with a formal diagnosis of dementia, of any type.
Exclusion Criteria
  • Patients and carers who are already involved in concurrent research
  • If the key professional feels that an approach to the person with dementia or their carer would be inappropriate, for example the dementia is very severe, or that an approach may increase distress
  • and any other important reason that the key professional may have for why the person with dementia or their carer should not be contacted.

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
TrainingEducational Dementia trainingPractices randomly allocated to the intervention arm will be asked to participate in tailored learning activities on dementia, over a three-month period and will be given an electronic training manual (based on Microsoft packages) which they can run in the background during and after consultations with people with known or suspected dementia syndrome and face-to- face individualised workshop sessions.
Primary Outcome Measures
NameTimeMethod
An increase in the proportion of patients with dementia receiving two dementia reviews per year, from 20% to 50%twelve month follow up
Secondary Outcome Measures
NameTimeMethod
documented concordance with referral to social servicestwelve month follow up
documented concordance with intervention recommendations on recording disclosure decisions & consequencestwelve month follow up
documented concordance with screening for depressiontwelve month follow up
quality of life, met and unmet need in carers and/or people with dementiatwelve month follow up
documented concordance with informing people with dementia and their carers about relevant local voluntary organisationstwelve month follow up
documented concordance with provision of legal informationtwelve month follow up
documented concordance with shared management of cholinesterase inhibitor medicationtwelve month follow up

Trial Locations

Locations (2)

Department of Primary Care and Population Health

🇬🇧

London, England, United Kingdom

University College London

🇬🇧

London, Greater London, United Kingdom

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