Psychosocial Impact of Chronic Pediatric illness on family: An observational study
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 入组人数
- 100
- 试验地点
- 1
- 主要终点
- To assess the psychosocial impact of children’s chronic illness on their families using the IOF scale.
研究概览
简要总结
Chronic pediatric illnesses especially malignant conditions have a huge psychosocial and financial impact on the family. The goals of pediatric palliative care are to ensure the best possible quality of life of the child as well as their caregivers by addressing the physical and psychological needs of the child and providing support to the family. Parents with depressive symptoms should receive particular attention to provide supportive care in their children’s pediatric palliative care programs.
Evidence on family-supportive care in pediatric palliative care research is scarce. We aim to study the impact of the children’s disease on their families and assess their unmet needs by applying the Impact of Family Scale (IOF). The Center for Epidemiologic Studies Depression scale (CES-D) will be used to assess the depressive symptoms in the parent. By identifying those affected, referral to a clinical psychologist will be made which will help in providing better counselling services and psychological support. This will help us to address their issues and to formulate an effective and holistic palliative care plan.
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 2.00 Year(s) 至 18.00 Year(s)（—）
- 性别
- All
入选标准
- •1.The study cohort will consist of parents of children with chronic diseases including malignancy.
- •2.Parents of children aged 2 to 18 years with an established diagnosis of a chronic illness.
排除标准
- •1.Parental refusal to participate in the study.
- •2.Parents suffering from major depressive disorders before the diagnosis of illness in the child.
结局指标
主要结局
To assess the psychosocial impact of children’s chronic illness on their families using the IOF scale.
时间窗: day one
次要结局
- 1.To find out the incidence of depressive symptoms in the parents of the affected children.(2.To investigate the association between parent-reported depressive symptoms, socio- demographic factors & impact on families)