NCT06466291招募中不适用
Registro de Enfermedad de Wilson en España
Asociación Española para el Estudio del Hígado1 个研究点 分布在 1 个国家目标入组 600 人开始时间: 2021年12月2日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 600
- 试验地点
- 1
- 主要终点
- To know the current status of Wilson Disease in Spain
研究概览
简要总结
The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain.
As secondary objectives, the prevalence and incidence of the disease will be analysed.
Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment.
Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.
详细描述
Retrospective and prospective study.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Other
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patients with a confirmed Wilson Disease diagnosis
排除标准
- •Refusal to sign the informed consent for the study
结局指标
主要结局
To know the current status of Wilson Disease in Spain
时间窗: 2025
次要结局
- To analyse the incidence of Wilson Disease in Spain(2025)
- To analyse the prevalence of Wilson Disease in Spain(2025)
研究者
研究点 (1)
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