Spanish Wilson Disease Registry
Recruiting
- Conditions
- Wilson Disease
- Registration Number
- NCT06466291
- Lead Sponsor
- Asociación Española para el Estudio del Hígado
- Brief Summary
The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain.
As secondary objectives, the prevalence and incidence of the disease will be analysed.
Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment.
Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.
- Detailed Description
Retrospective and prospective study.
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 600
Inclusion Criteria
- Patients with a confirmed Wilson Disease diagnosis
Exclusion Criteria
- Refusal to sign the informed consent for the study
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method To know the current status of Wilson Disease in Spain 2025
- Secondary Outcome Measures
Name Time Method To analyse the incidence of Wilson Disease in Spain 2025 To analyse the prevalence of Wilson Disease in Spain 2025
Trial Locations
- Locations (1)
Hospital Clinic
🇪🇸Barcelona, Spain