JPRN-UMIN000044307招募中未知
Japanese Alport Syndrome Patients Registry - Alport Registry
Japanese Society of Pediatric Nephrology0 个研究点目标入组 500 人开始时间: 2021年7月1日最近更新:
适应症
试验速览
- 阶段
- 未知
- 状态
- 招募中
- 发起方
- 入组人数
- 500
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- ot applicable 至 ot applicable（—）
- 性别
- All
入选标准
- 未提供
排除标准
- •1)Patients who have declined to provide their data when opting in consent or opting out consent 2)Patients who have only heterozygous mutations in the COL4A3 or COL4A4 gene, urinary findings are only hematuria and no proteinuria, renal function is normal, and family history also shows only hematuria. * To date, the definition of basement membrane thinning syndrome has not been determined, but in this study, such cases are treated as basement membrane thinning syndrome. ** As shown in the selection criteria 2), if there is a patient in the family who has urinary protein or renal dysfunction and is diagnosed with autosomal dominant Alport syndrome, hematuria-only patients are also enrolled. If you are uncertain about your decision, consult with the research office. 3) Patients judged to be inappropriate as a target by the judgment of researchers.
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