Digital Dance for People With Parkinson's Disease During the COVID-19 Pandemic
- Conditions
- Parkinson Disease
- Interventions
- Device: Digital dance for PD
- Registration Number
- NCT04942392
- Lead Sponsor
- Umeå University
- Brief Summary
Dance as a treatment to support physical, cognitive and emotional functioning, has gained increased acceptance as a healthcare intervention for people with Parkinson's Disease (PD). The impact of the COVID-19 pandemic has been far reaching with devastating effects for at-risk populations. To find alternative and safe treatment delivery options during the pandemic has been of outmost importance.
This mixed-methods, feasibility study on digital for people with Parkinson's Disease aimed to investigate: (1) the feasibility and safety of a digital home-based dance intervention for people with PD; (2) change in self-reported quality of life, cognitive complaints, psychological health and fatigue; and (3) the experience of digital dance for people with PD.
Twenty-three participants partook in 10 weekly digital dance classes at home via zoom. Feasibility outcomes measures were administered at post-test. Pre-post changes in self-reported quality of life, cognitive complaints, psychological health and fatigue were measured, as well as the experience of digital dance via focus groups.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 33
- Self-reported diagnosis of Parkinson's Disease
- Participant in Dance for PD at Balettakademien, Stockholm, Sweden
- None
Study & Design
- Study Type
- INTERVENTIONAL
- Study Design
- SINGLE_GROUP
- Arm && Interventions
Group Intervention Description digital dance for PD Digital dance for PD -
- Primary Outcome Measures
Name Time Method Feasibility outcome measures Assessed at post-test The following feasibility outcome measures were assessed: (a) Technical and safety issues, (b) Compliance and motivation, (c) Self-assessed improvement in physical function, wellbeing and cognitive function and (d) The importance of dance as an artistic and creative activity.
Each feasibility outcome measure was assessed via a 5-point Likert scale ranging from (1=very unsatisfactory, 5=very satisfactory), (1=not motivated, 5=very motivated), (1=noticeable worsening, 5=noticeable improvement) or (1=not meaningful, 5=very meaningful). Furthermore, each feasibility outcome measure had an open-ended question connected to it in order to capture any details related that feasibility domain. Two open-ended questions regarding positive and negative aspects of digital dancing were also included.
For each feasibility outcome measure, a criterion of success was developed in order to judge the the success rate of these feasibility outcome measures.
- Secondary Outcome Measures
Name Time Method Quality of life (QoL) Emotional well being 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale: Emotional well being score: 0-100 higher scores indicate more problemsDepression and anxiety 12 weeks (pretest - posttest) Severity of depression and anxiety symptoms measured by Hospital Anxiety Depression scale Anxiety score: 0-21 higher score indicate more anxiety Depression score: 0-21 higher score indicate more depression
Quality of life (QoL) Summary index 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39), Summary index: 0-100 higher scores indicate more problems.
Furthermore, scores on the following subscales were assessed:
* Mobility score: 0-100 higher scores indicate more problems
* Activity of Daily Living score: 0-100 higher scores indicate more problems
* Emotional well being score: 0-100 higher scores indicate more problems
* Stigma score: 0-100 higher scores indicate more problems
* Social support score: 0-100 higher scores indicate more problems
* Cognition score: 0-100 higher scores indicate more problems
* Communication score: 0-100 higher scores indicate more problems
* Bodily discomfort score: 0-100 higher scores indicate more problemsQuality of life (QoL) - Bodily discomfort 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale: Bodily discomfort score: 0-100 higher scores indicate more problemsQuality of life (QoL) Communication 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale: Communication score: 0-100 higher scores indicate more problemsQuality of life (QoL) Cognition 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale:Cognition score: 0-100 higher scores indicate more problemsQuality of life (QoL) Social support 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale: Social support score: 0-100 higher scores indicate more problemsQuality of life (QoL) Stigma 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale: Stigma score: 0-100 higher scores indicate more problemsQuality of life (QoL) Activity of Daily Living 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale: Activity of Daily Living score: 0-100 higher scores indicate more problemsQuality of life (QoL) - Mobility 12 weeks (pretest - posttest) Quality of life measured by Parkinson's Disease Questionnaire-39 (PDQ39).
Subscale Mobility score: 0-100 higher scores indicate more problemsFatigue 12 weeks (pretest - posttest) Fatigue measured by Checklist Individual Strength Questionnaire (CIS). Total score: 20-140
Subjective cognitive complaints 12 weeks (pretest - posttest) Improvement on subjective memory complaints measured by Prospective Retrospective Memory Questionnaire (PRMQ). Total score: 16-80 higher scores indicate more cognitive complaints prospective score: 0-100 higher scores indicate more cognitive complaints retrospective score: 0-100 higher scores indicate more cognitive complaints short term score: 0-100 higher scores indicate more cognitive complaints long term score: 0-100 higher scores indicate more cognitive complaints self cued score: 0-100 higher scores indicate more cognitive complaints environmentally cued: 0-100 higher scores indicate more cognitive complaints
Mental fatigue 12 weeks (pretest - posttest) Two questions from the Mental Fatigue Scale were used to measure mental fatigue (item 3) and recovery (item 4). Answers were given on a 7-point Likert scale.
Experience and meaning of digital dance for people with PD Assessed at post-test Two focus group interviews were conducted to examine the broader experience of digital dance for people with PD.
Trial Locations
- Locations (1)
Balettakademien
🇸🇪Stockholm, Sweden