A Study to Identify the Supportive Care Needs of Caregivers of Patients With Erdheim-Chester Disease and Other Histiocytic Diseases

Memorial Sloan Kettering Cancer Center1 site in 1 country250 target enrollmentJune 14, 2019

ConditionsSupportive Care Needs of Caregivers

Overview

Phase: Not Applicable
Intervention: Not specified
Conditions: Supportive Care Needs of Caregivers
Sponsor: Memorial Sloan Kettering Cancer Center
Enrollment: 250
Locations: 1
Primary Endpoint: Supportive Care Needs of informal caregivers
Status: Recruiting
Last Updated: 7 months ago

Overview Investigators Eligibility Criteria Outcomes Sites Similar Trials

Overview

Brief Summary

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Registry

clinicaltrials.gov

Start Date

June 14, 2019

End Date

June 1, 2026

Last Updated

7 months ago

Study Type

Observational

Sex

All

Investigators

Sponsor

Memorial Sloan Kettering Cancer Center

Responsible Party

Sponsor

Eligibility Criteria

Inclusion Criteria

•Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).
•Proficiency to complete study assessments in English, evaluated at the time of consent.
•Age 18 or over.