MedPath

A Non-Interventional Clinical Study to Evaluate Long-Term Safety and Effectiveness of HUMIRA (Adalimumab) in Pediatric Patients With Moderately to Severely Active Crohn's Disease (CD)

Active, not recruiting
Conditions
Crohn's Disease
Registration Number
NCT02130362
Lead Sponsor
AbbVie
Brief Summary

This is a registry study to evaluate the long-term safety and effectiveness of adalimumab in pediatric patients with moderately to severely active CD who are treated as recommended in the local product label.

Detailed Description

Not available

Recruitment & Eligibility

Status
ACTIVE_NOT_RECRUITING
Sex
All
Target Recruitment
1446
Inclusion Criteria
  • For a patient enrolling into the HUMIRA treatment group; A pediatric patient between the ages of 6 and 17 years inclusive at the time of enrollment, diagnosed with moderately to severely active CD who has been prescribed Humira therapy according to the routine clinical practice.
  • For a patient enrolling into the immunosuppressant therapy treatment group; A pediatric patient between the ages of 6 and 17 years inclusive at the time of enrollment, diagnosed with moderately to severely active CD who has been prescribed azathioprine, 6-mercaptopurine or methotrexate.
  • Parent or guardian; or patient (if 18 years of age or older at enrollment and rolling over from an AbbVie-sponsored investigational Pediatric CD investigation trial) has voluntarily signed and dated an Authorization for Use/Disclosure of Data (AUDD)/informed consent form (ICF) after the nature of the registry has been explained and the patient, patient's parent or legal guardian has had the opportunity to ask questions.
Exclusion Criteria
  • Patients should not be enrolled into the registry if they are currently being treated with any investigational agents or are receiving any investigational procedures.
  • Patients should not be enrolled into the immunosuppressant therapy treatment group if they require ongoing treatment with approved biologic agents including HUMIRA.

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Number of treatment-emergent other AESI per 100 PYsUp to 5 years
Number of treatment-emergent AESI per 100 PYs of infections and malignanciesUp to 10 years
Number of treatment-emergent SAEs per 100 patient years (PYs)Up to 10 years
Percentage of subjects with AESI of infections, malignancies, and pregnanciesUp to 10 years
Percentage of subjects with SAEsUp to 10 years
Number of subjects with other AESIUp to 5 years

Number of subjects with AESIs other than infections and malignancies

Percentage of subjects with other AESIUp to 5 years

Percentages of subjects with AESIs other than infections and malignancies

Number of subjects with Serious Adverse Events (SAEs)Up to 10 years
Number of subjects with Adverse Events of Special Interest (AESI) of infections, malignancies, and pregnanciesUp to 10 years
Secondary Outcome Measures
NameTimeMethod
Short Pediatric Crohn's Disease Activity Index (sh-PCDAI)Up to 5 years

Patient completed questionnaires

IMPACT IIIUp to 5 years

Completed by patients ages 10 through 17 years old

Short Quality of Life in Inflammatory Bowel Disease Questionnaire (SIBDQ)Up to 5 years

Completed by the patients who are 18 years of age or older

Work Productivity and Activity Impairment (WPAI) questionnaireUp to 5 years

Completed by caregiver up to the age of 17 years and completed by the patients of age 18 years or above.

Physician's Global Assessment of Disease Activity (PGA)Up to 5 years

Completed by the physician

Trial Locations

Locations (145)

Massachusetts General Hospital /ID# 141552

🇺🇸

Boston, Massachusetts, United States

Rady Children's Hospital San Diego /ID# 140883

🇺🇸

San Diego, California, United States

General Hospital of Thessaloniki Gennimatas /Id# 163658

🇬🇷

Thessaloniki, Greece

The Lady Davis Carmel Medical Center /ID# 151519

🇮🇱

Haifa, H_efa, Israel

Our Lady's Hospital /ID# 127438

🇮🇪

Manorhamilton, Leitrim, Ireland

Schneider Children's Medical Center /ID# 152683

🇮🇱

Petah Tikva, HaMerkaz, Israel

Duplicate_Kaplan Medical Center /ID# 152945

🇮🇱

Rehovot, HaMerkaz, Israel

Yitzhak Shamir Medical Center /ID# 157182

🇮🇱

Zerifin, HaMerkaz, Israel

University of South Alabama /ID# 137255

🇺🇸

Mobile, Alabama, United States

Private practice: Dr. Shervin Rabizadeh /ID# 137269

🇺🇸

Los Angeles, California, United States

Children's Hospital Los Angeles /ID# 141551

🇺🇸

Los Angeles, California, United States

Connecticut Children's Medical Center - Hartford /ID# 137265

🇺🇸

Hartford, Connecticut, United States

Nemours Children's Health System /ID# 148498

🇺🇸

Jacksonville, Florida, United States

University of Miami /ID# 140893

🇺🇸

Miami, Florida, United States

Emory Midtown Infectious Disease Clinic /ID# 144274

🇺🇸

Atlanta, Georgia, United States

Children's Ctr Digestive, US /ID# 144625

🇺🇸

Atlanta, Georgia, United States

Maine Medical Partners /ID# 147685

🇺🇸

Portland, Maine, United States

Tufts Medical Center /ID# 143581

🇺🇸

Boston, Massachusetts, United States

Boston Children's Hospital /ID# 164102

🇺🇸

Boston, Massachusetts, United States

Goryeb Children's Hospital /ID# 144275

🇺🇸

Morristown, New Jersey, United States

Duplicate_UMass Chan Medical School /ID# 148325

🇺🇸

Worcester, Massachusetts, United States

Women and Childrens Hosp /ID# 143778

🇺🇸

Buffalo, New York, United States

Univ of Mississippi Med Ctr,US /ID# 137239

🇺🇸

Jackson, Mississippi, United States

CCMC - Steven and Alexandra Cohen Children's Medical Center of New York /ID# 137266

🇺🇸

New Hyde Park, New York, United States

Columbia Univ Medical Center /ID# 144475

🇺🇸

New York, New York, United States

Univ Med Ctr at Stony Brook /ID# 140913

🇺🇸

Stony Brook, New York, United States

SUNY Upstate Medical University /ID# 148437

🇺🇸

Syracuse, New York, United States

Geisinger Medical Center /ID# 149910

🇺🇸

Danville, Pennsylvania, United States

M Health Fairview University of Minnesota Medical Center - East Bank /ID# 137238

🇺🇸

Minneapolis, Minnesota, United States

Duke Cancer Center /ID# 137268

🇺🇸

Durham, North Carolina, United States

Penn State Child Hosp.Hersh,PA /ID# 144476

🇺🇸

Hershey, Pennsylvania, United States

Children's Medical Center /ID# 149256

🇺🇸

Dallas, Texas, United States

Cook Children's Med. Center /ID# 144474

🇺🇸

Fort Worth, Texas, United States

University Of Vermont Medical /ID# 137263

🇺🇸

Burlington, Vermont, United States

Texas Children's Hospital /ID# 148211

🇺🇸

Houston, Texas, United States

Seattle Children's Hospital /ID# 140879

🇺🇸

Seattle, Washington, United States

Pediatric Specialty of VA /ID# 142831

🇺🇸

Fairfax, Virginia, United States

Swedish Medical Center /ID# 137258

🇺🇸

Seattle, Washington, United States

Alberta Health Services /ID# 128717

🇨🇦

Edmonton, Alberta, Canada

SHAT Hematologic Diseases /ID# 143572

🇧🇬

Sofia, Bulgaria

MultiCare Institute for Research & Innovation /ID# 152120

🇺🇸

Tacoma, Washington, United States

Hospital for Sick Children /ID# 127910

🇨🇦

Toronto, Ontario, Canada

The Univ of Western Ontario /ID# 137962

🇨🇦

London, Ontario, Canada

Duplicate_University of Manitoba / Health Scuience Centre / John Buhler Research /ID# 141310

🇨🇦

Winnipeg, Manitoba, Canada

IWK Health Center /ID# 127912

🇨🇦

Halifax, Nova Scotia, Canada

Zadar General Hospital /ID# 129830

🇭🇷

Zadar, Croatia

Fakultni nemocnice Hradec Kralove /ID# 128521

🇨🇿

Hradec Kralove, Czechia

Klinicki bolnicki centar Sestre milosrdnice /ID# 128256

🇭🇷

Zagreb, Grad Zagreb, Croatia

Fakultni Nemocnice Ostrava /ID# 127913

🇨🇿

Ostrava, Czechia

Fakultni nemocnice Olomouc /ID# 127437

🇨🇿

Olomouc, Czechia

Fakultni nemocnice Kralovske Vinohrady /ID# 127697

🇨🇿

Praha, Czechia

Krajska zdravotni a.s. Masarykova nemocnice v Usti nad Labem o.z. /ID# 129829

🇨🇿

Usti Nad Labem, Czechia

AP-HP - Hopital Necker /ID# 147702

🇫🇷

Paris, France

Duplicate_Hôpital Pierre Wertheimer /ID# 128193

🇫🇷

Bron, Rhone, France

Children's Clinic Of Tartu Uni /ID# 146017

🇪🇪

Tartu, Estonia

Rambam Health Care Campus /ID# 162061

🇮🇱

Haifa, H_efa, Israel

Universitaetsklinikum Ulm /ID# 148444

🇩🇪

Ulm, Baden-Wuerttemberg, Germany

Universitaetsklinikum Aachen /ID# 126591

🇩🇪

Aachen, Nordrhein-Westfalen, Germany

Duplicate_Universitaetsklinikum Erlangen /ID# 137274

🇩🇪

Erlangen, Bayern, Germany

Universitaetsklinikum Carl Gustav Carus an der TU Dresden /ID# 127696

🇩🇪

Dresden, Germany

Christliches Kinderhospital Osnabrueck /ID# 136629

🇩🇪

Osnabrueck, Germany

Duplicate_Universitaetsklinikum Muenster /ID# 148441

🇩🇪

Munster, Niedersachsen, Germany

Froehlich Gemeinschaftspraxis /ID# 127975

🇩🇪

Forchheim, Germany

Kinderarztpraxis Neuhausen /ID# 144402

🇩🇪

Munich, Germany

Duplicate_Universitaetsklinikum Freiburg /ID# 130010

🇩🇪

Freiburg, Germany

Universitaetsklinikum Regensburg /ID# 137140

🇩🇪

Regensburg, Germany

Agia Sofia Hospital /ID# 134349

🇬🇷

Athens, Attiki, Greece

Venizeleio General Hospital /ID# 147335

🇬🇷

Heraklion, Greece

General Hospital of Chest Diseases of Athens SOTIRIA /ID# 147690

🇬🇷

Athens, Attiki, Greece

Iatriko Kentro Athinon /ID# 130639

🇬🇷

Maroussi, Attiki, Greece

Duplicate_Ha'Emek Medical Center /ID# 156316

🇮🇱

Afula, Israel

Edmond And Lily Safra Children /ID# 148730

🇮🇱

Ramat Gan, Tel-Aviv, Israel

Sapienza University /ID# 141962

🇮🇹

Rome, Roma, Italy

Ospedale Maggiore Carlo Alberto Pizzardi /ID# 147347

🇮🇹

Bologna, Italy

Shaare Zedek Medical Center /ID# 144277

🇮🇱

Jerusalem, Yerushalayim, Israel

Duplicate_A.O.U. Policlinico G. Martino /ID# 141683

🇮🇹

Messina, Italy

ASST Fatebenefratelli Sacco - Ospedale Fatebenefratelli e Oftalmico /ID# 144279

🇮🇹

Milano, Italy

Duplicate_Universita di Napoli Federico II /ID# 144280

🇮🇹

Naples, Italy

ASST Fatebenefratelli Sacco/Ospedale dei Bambini Vittore Buzzi /ID# 141679

🇮🇹

Milan, Italy

Duplicate_POLICLINICO PAOLO GIACCONE /ID# 138410

🇮🇹

Palermo, Italy

A.O. Ospedali Riuniti Villa Sofia - Cervello /ID# 152684

🇮🇹

Palermo, Italy

Azienda Ospedaliero-Universitaria di Parma /ID# 147441

🇮🇹

Parma, Italy

Hospital of Lithuanian University of Health Sciences Kaunas Clinics /ID# 127809

🇱🇹

Kaunas, Lithuania

Azienda Sanitaria Locale di Pescara /ID# 141307

🇮🇹

Pescara, Italy

Duplicate_Academisch Medisch Centrum /ID# 141843

🇳🇱

Amsterdam, Noord-Holland, Netherlands

Vilnius University Hospital Santaros Klinikos /ID# 127810

🇱🇹

Vilnius, Lithuania

Duplicate_Erasmus Medisch Centrum /ID# 141841

🇳🇱

Rotterdam, Zuid-Holland, Netherlands

Centro Hospitalar Universitario de Sao Joao, EPE /ID# 138146

🇵🇹

Porto, Portugal

Ctr. Gastroenterologia Ped Oes /ID# 140875

🇵🇷

Mayaguez, Puerto Rico

Spitalul Clinic de Urgenta pentru Copii- Pediatrie II-Nefrologie Pediatrica /ID# 131297

🇷🇴

Cluj-Napoca, Cluj, Romania

Spitalul Clinic de Urgenta Pentru Copii Grigore Alexandrescu /Id# 130358

🇷🇴

Bucharest, Romania

Spitalul Clinic de Urgenta pentru Copii ?Louis Turcanu? /ID# 130251

🇷🇴

Timisoara, Timis, Romania

Complejo Hospitalario Universitario A Coruña /ID# 137235

🇪🇸

A Coruña, A Coruna, Spain

Hospital Universitario Vall d'Hebron /ID# 141778

🇪🇸

Barcelona, Spain

Hospital Clínico Universitario de Santiago-CHUS /ID# 141667

🇪🇸

Santiago de Compostela, A Coruna, Spain

Hospital Sant Joan de Deu /ID# 152059

🇪🇸

Esplugues de Llobregat, Barcelona, Spain

Hospital Universitario Germans Trias i Pujol /ID# 139400

🇪🇸

Badalona, Barcelona, Spain

Hospital Universitario Severo Ochoa /ID# 141545

🇪🇸

Leganes, Madrid, Spain

Hospital Universitari Son Espases /ID# 147446

🇪🇸

Palma de Mallorca, Illes Balears, Spain

Consorci Corporacio Sanitaria Parc Tauli Sabadell /ID# 149029

🇪🇸

Sabadell, Barcelona, Spain

OSI Ezkerraldea-Enkarterri-Cruces /ID# 141781

🇪🇸

Barakaldo, Vizcaya, Spain

Hospital Clinico Universitario Virgen de la Arrixaca /ID# 138460

🇪🇸

El Palmar, Murcia, Spain

Hospital Universitario Puerta de Hierro - Majadahonda /ID# 157872

🇪🇸

Majadahonda, Madrid, Spain

Hospital General de Granollers /ID# 140882

🇪🇸

Barcelona, Spain

Hospital Universitario de Girona Doctor Josep Trueta /ID# 147572

🇪🇸

Girona, Spain

Hospital Universitario Vall d'Hebron /ID# 146015

🇪🇸

Barcelona, Spain

Hospital Infantil Universitario Nino Jesus /ID# 165738

🇪🇸

Madrid, Spain

Hospital Universitario La Paz /ID# 161152

🇪🇸

Madrid, Spain

Hospital Universitario 12 de Octubre /ID# 136998

🇪🇸

Madrid, Spain

Hospital Regional Universitario de Malaga /ID# 144289

🇪🇸

Malaga, Spain

Compl Hospital Univer de Vigo /ID# 136999

🇪🇸

Pontevedra, Spain

Hospital Universitario Dr. Peset /ID# 159484

🇪🇸

Valencia, Spain

Hospital Universitario y Politecnico La Fe /ID# 141847

🇪🇸

Valencia, Spain

Karolinska University Hospital Solna /ID# 129045

🇸🇪

Solna, Stockholms Lan, Sweden

University Hospital of Derby and Burton NHS Foundation Trust /ID# 131592

🇬🇧

Derby, Derbyshire, United Kingdom

NHS Greater Glasgow and Clyde /ID# 127436

🇬🇧

Glasgow, Scotland, United Kingdom

Alder Hey Children's Hospital /ID# 138013

🇬🇧

Liverpool, United Kingdom

Birmingham Women's and Children's NHS Foundation Trust /ID# 136631

🇬🇧

Birmingham, United Kingdom

St Helier Hospital /ID# 150097

🇬🇧

Carshalton, Surrey, United Kingdom

Duplicate_Cambridge University Hospitals NHS Foundation Trust /ID# 143779

🇬🇧

Cambridge, United Kingdom

NHS Grampian /ID# 131296

🇬🇧

Aberdeen, United Kingdom

Manchester University NHS Foundation Trust /ID# 128476

🇬🇧

Manchester, United Kingdom

St George's University Hospitals NHS Foundation Trust /ID# 131590

🇬🇧

Tooting, United Kingdom

Duplicate_The Newcastle Upon Tyne Hospitals NHS Foundation Trust /ID# 147438

🇬🇧

Newcastle upon Tyne, United Kingdom

University Clinical Center Tuzla /ID# 130638

🇧🇦

Tuzla, Tuzlanski, Bosnia and Herzegovina

Hospital Universitario Central de Asturias /ID# 163053

🇪🇸

Oviedo, Asturias, Spain

Tallinn Children's Hospital /ID# 126974

🇪🇪

Tallinn, Estonia

2CA-Braga, Hospital de Braga /ID# 138269

🇵🇹

Braga, Portugal

Spitalul Clinic Judetean de Urgenta Targu Mures /ID# 137014

🇷🇴

Targu Mures, Romania

University Hospital Southampton NHS Foundation Trust /ID# 147538

🇬🇧

Southampton, Hampshire, United Kingdom

Sheffield Children's Hospital NHS Foundation Trust /ID# 130370

🇬🇧

Sheffield, England, United Kingdom

Kobenhavns Universitet - Hvidovre Hospital (HH) /ID# 146013

🇩🇰

Hvidovre, Hovedstaden, Denmark

Barts Health NHS Trust /ID# 128471

🇬🇧

London, London, City Of, United Kingdom

Univ Alabama, Birmingham CCC /ID# 146060

🇺🇸

Birmingham, Alabama, United States

Phoenix Children's Hospital /ID# 141336

🇺🇸

Phoenix, Arizona, United States

Univ California, San Francisco /ID# 141312

🇺🇸

San Francisco, California, United States

Mayo Clinic - Rochester /ID# 149245

🇺🇸

Rochester, Minnesota, United States

Children's Hospital Oklahoma /ID# 144047

🇺🇸

Oklahoma City, Oklahoma, United States

Hospital Arquitecto Marcide - Complejo Hospitalario Universitario de Ferrol /ID# 138462

🇪🇸

Ferrol, A Coruna, Spain

Columbia Univ Medical Center /ID# 144440

🇺🇸

New York, New York, United States

Children's Hospital Colorado - Aurora /ID# 137261

🇺🇸

Aurora, Colorado, United States

Children's Hospital New Orleans /ID# 144477

🇺🇸

New Orleans, Louisiana, United States

Yale University School of Medicine /ID# 137257

🇺🇸

New Haven, Connecticut, United States

Duplicate_Medical University of South Carolina /ID# 144473

🇺🇸

Charleston, South Carolina, United States

Univ NC Chapel Hill /ID# 137236

🇺🇸

Chapel Hill, North Carolina, United States

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