Costs of Care and Adherence to Treatment for Cystic Fibrosis
Completed
- Conditions
- Cystic Fibrosis
- Registration Number
- NCT02832479
- Lead Sponsor
- Hospices Civils de Lyon
- Brief Summary
Evolution of medical care for patients with cystic fibrosis appeared in recent years: prolongation of life expectancy with consequently increased comorbidities and the use of lung transplantation, systematic neonatal screening of new born since 2002, prescription of expensive new molecules or new presentation. This evolution justifies to realize an update of statistics of costs of care and to assess adherence to treatment
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 500
Inclusion Criteria
- Patients with cystic fibrosis,
- Followed by one of the cystic fibrosis center of the Rh么ne-Alpes region (pediatric and adult of Lyon and Grenoble)
- Affiliated to the general scheme of health insurance,
- And domiciled in the Rh么ne-Alpes region.
Read More
Exclusion Criteria
- Transplanted patients
Read More
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method treatment cost 12 months
- Secondary Outcome Measures
Name Time Method adherence rate for chronic treatment 12 months
Trial Locations
- Locations (1)
Hospices civils de Lyon, centre hospitalier lyon Sud
馃嚝馃嚪Pierre Benite, France