Reframing occupational participation and social inclusion of children labelled cancer survivors in South India: A participatory ethnography
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 入组人数
- 8
- 试验地点
- 2
- 主要终点
- To obtain knowledge about occupational
研究概览
简要总结
This study is a participatory ethnography that seeks to understand the occupational participation and social inclusion of children labelled cancer survivors through their perspectives to construct a situated and contextualized knowledge about their childhoods. The study aims to advance the knowledge about children labelled cancer survivors and their childhoods in India through the following research questions: 1) How do children labelled cancer survivors construct and negotiate their identities as children and cancer survivors in and through their occupational participation? 2) How is occupational participation related to the experience of social inclusion in children labelled cancer survivors?
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 12.00 Year(s) 至 18.00 Year(s)（—）
- 性别
- All
入选标准
- •Children regardless of their cancer category who were diagnosed with cancer in the year 2021 or after (to provide recency in reflecting on their experiences).
- •Age 12-18 years.
- •The minimum age of 12 is to capture the breadth of life experience they would possess and the maximum age of 18 is according to the legal definition of children according to the Juvenile Justice (Care and Protection of Children) Act 2015 issued by the Government of India (Ministry of Women &Child Development, 2024)
- •Children who are aware of the diagnosis as reported by the caregiver or parent will only be recruited.
- •Children who completed their intensive biomedical treatment in the hospital returned to their own homes and restarted participation in the community including schooling.
- •Children who are receiving (e.g. in the maintenance phase of chemotherapy requiring no long-stay hospital admission or attending yearly follow-up) or have received care from CMC.
- •Children from Kerala or Tamil Nadu who can speak English Tamil or Malayalam will be recruited.
排除标准
- •If the healthcare professional and or or caregiver or parent suggest that participation in the study poses a potential risk (e.g. psychological or emotional disturbances) to the child.
结局指标
主要结局
To obtain knowledge about occupational
时间窗: At one year after initiation of treatment
participation and social inclusion of children labelled cancer survivors in South India through their perspectives.
时间窗: At one year after initiation of treatment
次要结局
- To obtain knowledge about children & childhoods and(rethinking equitable & justice oriented health services & inclusion policies for children labelled cancer survivors in India)
研究者
Leni Grace Mathew
Christian Medical College