Describing Relationships Between Psychosocial Outcomes and Readiness for Transition in Adolescent and Young Adult Patients With Uveitis - a Pilot Study
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Uveitis
- Sponsor
- Sheffield Children's NHS Foundation Trust
- Enrollment
- 56
- Locations
- 1
- Primary Endpoint
- Generalised Anxiety
- Status
- Completed
- Last Updated
- 7 years ago
Overview
Brief Summary
It is widely acknowledged that the transition from paediatric to adult health services should be a multidimensional and multidisciplinary process that addresses the medical, psychosocial, and educational needs of adolescents and young adults (AYA). Despite this, there is currently a scarcity of research examining the relationships between psychosocial factors (e.g., anxiety, social support) and transition readiness in AYA with uveitis. This study therefore aims to examine the relationships between psychosocial factors and transition readiness in pre-transfer adolescents and post-transfer young adults aged 10-25 years diagnosed with JIA at a single centre.
In total, 25 adolescents aged 10-16 years, together with a parent/guardian, will participate at Sheffield Children's Hospital and 10 young adults aged 16-25 years will participate at Sheffield Teaching Hospitals. Participants completed a battery of self-report questionnaire measuring psychosocial factors (anxiety/depression, social support, family functioning, health-related quality of life) and transition readiness (transition knowledge and skills, self-efficacy). Uveitis disease severity was also measured during clinic appointments. A subset of participants will also be asked to take part in a focus group. This study received full ethical approval, and all participants will give their written informed assent or consent before taking part.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Diagnosis of uveitis
- •Uveitis managed by either Sheffield Children's NHS Foundation Trust or Sheffield Teaching Hospitals NHS Foundation Trust
- •Fluent in English
Exclusion Criteria
- •No diagnosis of uveitis
- •Uveitis not managed by either Sheffield Children's NHS Foundation Trust or Sheffield Teaching Hospitals NHS Foundation Trust
- •Not fluent in English
Outcomes
Primary Outcomes
Generalised Anxiety
Time Frame: Day 1, when participants complete the study questionnaire
Generalised Anxiety Disorder-7 Questionnaire (Spitzer et al., 2006)
Secondary Outcomes
- Family functioning(Day 1, when participants complete the study questionnaire)
- Health-related quality of life(Day 1, when participants complete the study questionnaire)
- Social support(Day 1, when participants complete the study questionnaire)
- Uveitis disease severity(Day 1, during hospital clinic appointment)
- Depression(Day 1, when participants complete the study questionnaire)
- Prosocial and problem behaviours(Day 1, when participants complete the study questionnaire)