Project Carer Matters 2: Evaluating the Effectiveness and Implementation of Caregiver Support Initiatives for Caregivers of Older Patients in Singapore
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 400
- 试验地点
- 1
- 主要终点
- Preparedness for Caregiving Scale
研究概览
简要总结
We are evaluating the caregiver support initiatives at a tertiary hospital in Singapore (Tan Tock Seng Hospital - TTSH) provided to caregivers caring for older patients.
The evaluation will focus on 1) evaluating the process / delivery / implementation of these initiatives to caregivers and 2) the outcomes of caregivers and their care recipients after receiving these caregiver support services at TTSH. Research questions are as follows:
Process evaluation:
- How are the bundle(s) of caregiver support initiatives at TTSH delivered to caregivers?
- What and how was impact achieved for these initiatives?
Outcome evaluation: 3. Did caregivers (and patients) benefit from these support initiatives and how? 4. Which aspects of the caregiver support initiatives are most beneficial to caregivers (and patients)?
Eligible caregivers will be invited to take part in the study and to complete 3 surveys and an optional interview over the period of their care recipients' hospital stay at TTSH, and 2 months after discharge. During their care recipients' stay, they may be introduced to any of the caregiver support initiatives, based on their needs. Caregivers enrolled in this study will take part in 3 surveys - 1 conducted at the beginning of care recipients' hospital stay, 1 conducted around the discharge period and 1 conducted one month after discharge. The aim of the surveys is to find out if caregivers have attended or used any of these services and whether they benefited from them.
详细描述
This is a mixed method study that seeks to evaluate the bundle of caregiver support initiatives being provided to caregivers at TTSH, based on their needs. The evaluation will focus on 1) evaluating the process / delivery / implementation of these initiatives to caregivers and 2) the outcomes of caregivers and their care recipients after receiving these caregiver support services at TTSH. Research questions are as follows:
Process evaluation:
- How are the bundle(s) of caregiver support initiatives at TTSH delivered to caregivers?
- What and how was impact achieved for these initiatives?
Outcome evaluation: 3. Did caregivers (and patients) benefit from these support initiatives and how? 4. Which aspects of the caregiver support initiatives are most beneficial to caregivers (and patients)?
Quantitative methods:
研究设计
- 研究类型
- Interventional
- 分配方式
- Non Randomized
- 干预模型
- Sequential
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •21 years of age and above
- •Main or secondary caregiver of an older person receiving home-based care
- •Able to read and converse in English
- •Has a mobile smartphone and is able to navigate basic functionalities on mobile apps
排除标准
- •Participants who are cognitively impaired
- •Unwilling to download and utilise app
- •Unable to read or converse in English comfortably
研究组 & 干预措施
Intervention arm
Participants receive the following interventions as deemed appropriate based on their caregiving and learning needs:
- CarePal: A one-stop resource library for caregivers of older adults
- Nasogastric tube (NGT) webapp: An electronic training platform to learn NGT feeding and management
- Carer OnBoard programme
- Caregiver resources in NHG Health App (NHA): Relevant healthcare professionals or TTSH staff will introduce caregivers to the resources they may need in the NHA app. ;
- Carer guide, a resource booklet providing information and community resources for caregivers.
- Group Caregiver Training, for caregivers who are able to attend group caregiver training (instead of learning at the bedside);
- NHG Care Telephonic team to provide telephonic support to caregivers post-discharge.
- Nurses or other healthcare professionals providing relevant information on community programmes
干预措施: Caregiver Support Model (Other)
Control Arm
Participants in this group will receive standard caregiver support
干预措施: Standard caregiver support (Other)
结局指标
主要结局
Preparedness for Caregiving Scale
时间窗: 1 month
8-item scale measuring caregiver preparedness for caregiving. Average score ranges from 0 - 4, higher score indicating better preparedness for caregiving
Caregiver Resourcefulness Scale
时间窗: 1 month
8-item scale measuring caregiver resourcefulness. Total score calculated ranging from 8 - 40 with higher scores indicating higher resourcefulness
Zarit Burden Scale - 12 Item
时间窗: 1 month
12-item scale measuring caregiver burden. Total score calculated range from 0-48, with higher scores indicating higher burden
次要结局
- Hospital Anxiety and Depression Scale(1 month)
- EQ5D-5L(1 month)
研究者
Glass George Frederick Jr
Principal Investigator
Tan Tock Seng Hospital