Caregiving burden of parents of children with advanced cancer
Not Applicable
- Registration Number
- CTRI/2023/02/049476
- Lead Sponsor
- Tata Memorial Hospital
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot Yet Recruiting
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
Parents of children under 18 referred to the department of palliative medicine, TMH. Inclusion Criteria
1. Can understand Hindi.
2. Should be able to visit/contact the paediatric palliative care clinic, for at least one follow-up.
3. Parents who have cared for their child diagnosed with advanced cancer for at least 3 months.
4. Parents whose children who are on Oral Metronomic Chemotherapy and are following up at or after 3
months in the Paediatric Oncology OPD.
Exclusion Criteria
1. Children whose prognosis is very poor with a survival time of not more than 15 days.
2. Caregivers with any previous psychiatric conditions or those who are cognitively impaired.
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method sing the validated CBS, calculation of the mean score to assess the level of caregiver <br/ ><br>burden (mild, moderate, or severe).Timepoint: 3 months or more
- Secondary Outcome Measures
Name Time Method Reliability of Caregiver Burden Scale using Chronbachs alphaTimepoint: once