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Quality of Dying in the Intensive Care Unit: Validation of the CAESAR Scale

Completed
Conditions
Anxiety
Depression
Posttraumatic Stress Disorder
Registration Number
NCT01549197
Lead Sponsor
Assistance Publique - Hôpitaux de Paris
Brief Summary

The purpose of the study is to evaluate the quality of the dying process in french ICUs (assessed by the CAESAR scale) and to compare physicians', nurses' and relatives perceptions and experiences, with a one-year follow-up of bereaved relatives.

Our hypothesis is that perception of the quality of dying may impact on relatives' experience of bereavement (anxiety, depression, complicated grief, posttraumatic stress disorder (PTSD)).

Detailed Description

Seventy percent of all deaths occur in the hospital environment, and amongst them 20% occur in intensive care units (ICU). In France, no studies have evaluated the quality of the end-of-life process from both the professional and the lay perspective.

The CAESAR scale has been developed from literature reviews and qualitative interviews with relatives, physicians and nurse to assess quality of dying in ICU. Our hypothesis is that perception of the quality of dying may impact on relatives' experience of bereavement (anxiety, depression, complicated grief, PTSD).

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
475
Inclusion Criteria
  • Adult patients Deceased in the ICU after at least 48 hours of ICU stay
  • At least one visit of a relative in the ICU
Exclusion Criteria
  • no French-speaking relative

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
CAESAR scoreWithin 3 weeks after patient's death

Score on the 32-item CAESAR scale assessing quality of end-of-life process

Secondary Outcome Measures
NameTimeMethod
Job strain of the physicians and nurses in charge of the patientwithin 3 weeks following patient's death

Score on the Job strain, a validated scale assessing stress in work environment

Anxiety and depression3 months after patient's death

Anxiety and depression of the relative, assessed by the Hospital Anxiety and Depression Scale (HADS)

Post Traumatic Stress Disorder3 months after patient's death

PTSD of relatives assessed by Inventory of Event Scale revised (IES-R)

Complicated Grief6 months after patients' death

Complicated grief assessed by the Inventory of Complicated Grief (ICG) scale

PTSD12 months after patient's death

PTSD assessed by IES-R

Trial Locations

Locations (47)

Réanimation médicale CHU de la Cavale Blanche

🇫🇷

Brest, France

Réanimation CHU ESTAING

🇫🇷

Clermont-Ferrand, France

Réanimation polyvalente CH Sud Francilien

🇫🇷

Evry, France

Réanimation polyvalente Hôpital Les Oudairies

🇫🇷

La Roche sur Yon, France

Réanimation Centre Hospitalier Intercommunal André Grégoire

🇫🇷

Montreuil, France

Réanimation médicale Hôpital Saint André

🇫🇷

Bordeaux, France

Réanimation polyvalente CH de Dieppe

🇫🇷

Dieppe, France

Réanimation Polyvalente Centre Hospitalier de Gonesse

🇫🇷

Gonesse, France

Anesthésie-Réanimation CHU de Nantes- Hôtel Dieu

🇫🇷

Nantes, France

Service de réanimation médicale et toxicologique CHU Lariboisière

🇫🇷

Paris, France

Réanimation Hôpital Font-Pré

🇫🇷

Toulon, France

Réanimation Polyvalente Centre Hospitalier Victor Dupouy

🇫🇷

Argenteuil, France

Réanimation médicale Centre hospitalier Pays d'Aix

🇫🇷

Aix-en-Provence, France

Réanimation Chirurgicale

🇫🇷

Caen, France

Réanimation Médicale Hôpital de Caen

🇫🇷

Caen, France

Réanimation médicale Hôpital Calmette

🇫🇷

Lille, France

Réanimation Médico-Chirugicale CH Chambéry

🇫🇷

Chambéry, France

Réanimation médicale Hôpital de La Croix Rousse

🇫🇷

Lyon, France

Réanimation polyvalente Centre hospitalier de Versailles

🇫🇷

Le Chesnay, France

Réanimation polyvalente Hôpital Roger Salengro

🇫🇷

Lille, France

Service de réanimation Institut Paoli Calmettes

🇫🇷

Marseille, France

Réanimation polyvalente GH Edouard Herriot

🇫🇷

Lyon, France

Réanimation polyvalente CH Bretagne Sud

🇫🇷

Lorient, France

Service d'anesthésie et de réanimation Chu Timone

🇫🇷

Marseille, France

Service d'anesthésie et de réanimation Hôpital Nord

🇫🇷

Marseille, France

Réanimation Médicale Groupement Hospitalier Edouard Herriot

🇫🇷

Lyon, France

Service de réanimation polyvalente CHR - Hôpital de la Source

🇫🇷

Orléans, France

Service de réanimation Hôpital Saint Joseph

🇫🇷

Paris, France

Service de réanimation, détresses respiratoires et infections sévères Hôpital Nord

🇫🇷

Marseille, France

Réanimation Centre hospitalier Marc Jacquet

🇫🇷

Melun, France

Réanimation Anesthésie CHU Saint Eloi

🇫🇷

Montpellier, France

Réanimation médicale CHU de Nancy- Hôpital central

🇫🇷

Nancy, France

Reanimation medicale, Hôpital Saint Louis

🇫🇷

Paris, France

réanimation chirurgicale Groupe Hospitalier Universitaire Carémeau

🇫🇷

Nîmes, France

Réanimation chirurgicale Hôpital Saint-Louis

🇫🇷

Paris, France

Neuro-réanimation chirurgicale Groupe hospitalier Pitié-Salpêtrière

🇫🇷

Paris, France

Réanimation polyvalente au CH d'Annecy

🇫🇷

Pringy, France

Service de réanimation médicale Hôpital Victor Provo

🇫🇷

Roubaix, France

Réanimation médicale Hôpital Cochin

🇫🇷

Paris, France

Réanimation médico-chirurgicale CH de Roanne

🇫🇷

Roanne, France

Service de réanimation médicale CHU CH Nicolle

🇫🇷

Rouen, France

Service de réanimation polyvalente CH de Saint Lô

🇫🇷

Saint Lô, France

Réanimation médicale Hôpital Chatilliez

🇫🇷

Tourcoing, France

Réanimation polyvalente Centre hospitalier d'Angoulême

🇫🇷

Saint Michel, France

Service de réanimation polyvalente CH de Valenciennes

🇫🇷

Valenciennes, France

Réanimation Polyvalente CH Bretagne Atlantique

🇫🇷

Vannes, France

Service de réanimation médico-chirurgicale Institut Gustave Roussy

🇫🇷

Villejuif, France

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