Testing the efficacy of an online interactive decision aid and educational tool to help parents of children with intellectually disabilities choose whether or not to have genome-wide sequencing

Completed

• Conditions: Intellectual disabilty; Mental and Behavioural Disorders

• Registration Number: ISRCTN11625873
• Lead Sponsor: Canadian Institute of Health Research (Canada)

Brief Summary

2018 results in: https://www.ncbi.nlm.nih.gov/pubmed/30033481

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2015-02-19
• Last Update Posted: 19 November 2018
• Study Completion: 2019-03-30

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 50

Inclusion Criteria

1. Two-parent family with child who has a significant developmental delay or intellectual disability with an unidentified cause after standard testing, including microarray, and who has been seen by Dr Anna Lehman (University of British Columbia, Department of Medical Genetics, Canada)
2. Fluent in English
3. Access to the internet
4. All ages, but mostly age 0–18 years

Exclusion Criteria

Not meeting inclusion criteria

Study & Design

• Study Type: Interventional
• Study Design: Not specified