To understand the experiences, challanges and how parents deal with their children having MPS disease.
Not Applicable
- Registration Number
- CTRI/2024/06/068279
- Lead Sponsor
- eha Jakhar
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot Yet Recruiting
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
Either Mother or Father of children age between 2 to 14 yrs diagnosed with Mucopolysaccharidosis stage I II IV VI VII IX
Those who are able to communicate through english or hindi
Exclusion Criteria
Not able to participate
those with type III disease
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method