Psychological consequences of PGD in families where one of the parents is a carrier of Huntington*s Disease

Completed

• Conditions: Huntingtons chorea; Huntingtons disease; 10029299

• Registration Number: NL-OMON40909
• Lead Sponsor: Klinische Genetica

Brief Summary

Trial is onging in other countries

Detailed Description

Not available

Study Timeline

• Study Completion: 2016-01-03
• Last Update Posted: 23 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: Not specified
• Target Recruitment: 18

Inclusion Criteria

Parents who have one or more children by means of PGD and for whom (proven) Huntington*s disease in one of the parents was the indication for PGD .

Exclusion Criteria

Severe cognitive deficiency and psychiatric disturbances. If these are a consequence of Huntingtons disease, the unaffected partner, if available, will be approached for the interview.

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Current psychological functioning of parents and their family</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>n.a.</p><br>