Myasthenia Gravis - Utilising Cross Platform Quantitative Content Analysis to uncover and validate the unmet needs of Myasthenia patients
- Conditions
- G70.0Myasthenia gravis
- Registration Number
- DRKS00028999
- Lead Sponsor
- Charité Campus Charité Mitte
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 799
Inclusion Criteria
age = 18
Exclusion Criteria
none
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method The main objective of this study is to categorise questions that users of Facebook groups ask other users about MG. For this purpose, the frequencies of question categories and subcategories are examined as a surrogate for unmet needs.
- Secondary Outcome Measures
Name Time Method The secondary aim of this study is to compare and link the frequency of question categories with other parameters (such as author category, see below) posted in different Facebook groups in order to validate the relevance and authenticity of queries in relation to the broader MG population.<br>For this, the queries posted in multiple Facebook groups will be examined for:<br>- Author categories [diagnosed MG; previously undiagnosed/confirmed MG; unknown; patient's friend/family; professional (including physicians)]<br>- User categories (users with one-time contributions, users with more frequent contributions and so-called superusers).<br>- Gender.<br>