MedPath

Study of a Gene Therapy Treatment for Hemophilia A

Phase 3
Withdrawn
Conditions
Hemophilia A
Interventions
Genetic: SPK-8011
Registration Number
NCT06297486
Lead Sponsor
Spark Therapeutics, Inc.
Brief Summary

The purpose of this study is to evaluate the efficacy of SPK-8011 in preventing bleed episodes compared with FVIII prophylaxis in participants with hemophilia A without FVIII inhibitors on routine FVIII prophylaxis.

Detailed Description

Not available

Recruitment & Eligibility

Status
WITHDRAWN
Sex
Male
Target Recruitment
85
Inclusion Criteria
  • Have a negative anti-AAV-Spark200 neutralizing antibody (NAb) test result.

  • Are adult males with severe or moderately severe hemophilia A, defined as endogenous FVIII activity ≤3%, as documented by a certified laboratory (historically or during the Screening Period) and where the FVIII:C level is measured more than 96 hours after the prior dose of an extended-half-life FVIII

  • Have ≥150 documented exposure days to an FVIII protein product such as recombinant, plasma-derived, or extended half-life FVIII product

  • Have no prior history of hypersensitivity or anaphylaxis associated with the administration of any FVIII product.

  • Have screening hepatic ultrasound without evidence of cirrhosis and no laboratory or clinical evidence per the Investigator's judgment of advanced liver disease or cirrhosis.

  • Have a negative test for inhibitor against FVIII (ie, <0.6 Bethesda units [BU]) during screening.

  • Have no documented FVIII inhibitor (ie, <0.6 BU), FVIII half-life <6 hours, or FVIII recovery <66% in the 5 years prior to screening.

  • Candidates who completed successful immune tolerance induction (ITI) at least 5 years before screening are eligible, provided they have had no evidence of inhibitor recurrence (permanent or temporary) within 5 years prior to screening as may be indicated by detection of an inhibitor, FVIII half-life <6 hours, or FVIII recovery <66% since completing ITI.

  • If human immunodeficiency virus (HIV)-positive at screening, have an adequate cluster of differentiation 4 (CD4) count (>200/mm3) and undetectable viral load (<50 genome copies [gc]/mL), are on an antiretroviral drug regimen, and have completed at least 12 weeks of this treatment regimen prior to screening.

  • Meet the following inclusion criteria by cohort:

    • Cohort A: have documented history of prior treatment with FVIII prophylaxis (defined as receiving a prescribed dose and frequency of FVIII infusions with the intent to treat continuously for 52 weeks per year) for a minimum of 6 months prior to screening; and are willing to continue their FVIII prophylaxis during the Lead-In Period of this study (minimum of 24 weeks).
    • Cohort B: have documented history of prior treatment with FVIII on demand for a minimum of 6 months that shows ≥5 treated bleeds in the last 6 months prior to screening.
    • Cohort C: have documented history of prior treatment with emicizumab prophylaxis for a minimum of 6 months prior to screening.
Exclusion Criteria
  • Have an inherited or acquired bleeding disorder other than hemophilia A
  • Have inherited or acquired thrombophilia, have signs of thromboembolic disease in the Investigator's judgment, or are on current treatment for thromboembolic disease. A history of previous catheter-associated thrombosis for which anti-thrombotic treatment is not currently ongoing is not considered an exclusion criterion.
  • Have concurrent disease, treatment, or abnormality in clinical laboratory tests that could interfere with the conduct of the study or that would, in the opinion of the Investigator or Sponsor, preclude the candidate's safe participation in and completion of the study, or the interpretation of the study results.

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
Cohort CSPK-8011Participants with severe or moderately severe hemophilia A without FVIII inhibitors using emicizumab prophylaxis
Cohort A (Primary Cohort)SPK-8011Participants with severe or moderately severe hemophilia A without FVIII inhibitors using routine FVIII prophylaxis
Cohort BSPK-8011Participants with severe or moderately severe hemophilia A without FVIII inhibitors using on-demand FVIII replacement therapy
Primary Outcome Measures
NameTimeMethod
Annualized Bleed Rate (ABR) for All Bleeds [Cohort A]Up to 66 weeks post-SPK-8011 infusion
Secondary Outcome Measures
NameTimeMethod
ABR for treated bleeds [Cohort A]Up to approximately 10 years
Mean ABR for all bleeds and treated bleeds [Cohort C]Up to approximately 10 years
FVIII: C levels over time from Week 26 [Cohort C]Up to approximately 10 years
Median Time to First Immunomodulation-related Corticosteroid Dose [Cohorts A, B, C]Up to approximately 10 years
Annualized FVIII dosage [Cohort A]Up to approximately 10 years
Mean Change of Total Hemophilia Joint Health Score [Cohort A]Baseline, up to 66 weeks post-SPK-8011 infusion
Proportion of Participants Who Receive IV Methylprednisolone (IVMP) Prior to Week 8 (Early IVMP) [Cohorts A, B, C]Up to approximately 10 years
Median FVIII: C levels [Cohort A]Up to approximately 10 years
FVIII:C levels over time [Cohort A]Up to approximately 10 years
Proportion of Participants Who Receive Secondary Oral Immunomodulation [Cohorts A, B, C]Up to approximately 10 years
Proportion of participants with treatment-related AEs of Infusion Reaction [Cohorts A, B, C]Up to approximately 10 years
Percentage of Participants with ABR=0 for all bleeds; treated bleeds; treated spontaneous bleeds; and treated joint and target joint bleeds [Cohort A]Up to approximately 10 years
ABR for treated spontaneous, joint, and target joint bleeds [Cohort A]Up to approximately 10 years
Proportion of Resolved Target Joints [Cohort A]Up to approximately 10 years
Median Duration of Secondary Oral Immunomodulation [Cohorts A, B, C]Up to approximately 10 years
Proportion of participants with AESIs [Cohorts A, B, C]Up to approximately 10 years
Proportion of Participants with FVIII Inhibitor Development [Cohorts A, B, C]Up to approximately 10 years
Proportion of participants with Treatment-related AEs of ALT Elevation [Cohorts A, B, C]Up to approximately 10 years
Proportion of participants with AEs and SAEs [Cohorts A, B, C]Up to approximately 10 years
Number of participants with abnormal physical exam findings, abnormal vital signs, and abnormal selected clinical laboratory test results [Cohorts A, B, C]Up to approximately 10 years

Trial Locations

Locations (27)

Phoenix Children's Hospital

🇺🇸

Phoenix, Arizona, United States

Loma Linda University Health

🇺🇸

Loma Linda, California, United States

Orthopaedic Institute for Children/Orthopaedic Hemophilia Treatment Center

🇺🇸

Los Angeles, California, United States

Kaiser Permanente-Oakland Medical Center

🇺🇸

Oakland, California, United States

Kaiser Permanente-Roseville Medical Center

🇺🇸

Roseville, California, United States

Kaiser Permanente -Sacramento Medical Center

🇺🇸

Sacramento, California, United States

Kaiser Permanente -San Francisco Medical Center

🇺🇸

San Francisco, California, United States

University of California - San Francisco

🇺🇸

San Francisco, California, United States

Kaiser Permanente- Santa Clara Medical Center

🇺🇸

Santa Clara, California, United States

Kaiser Permanente-Vallejo Medical Center

🇺🇸

Vallejo, California, United States

Kaiser Permanente -Walnut Creek Medical Center

🇺🇸

Walnut Creek, California, United States

University of Florida

🇺🇸

Gainesville, Florida, United States

Boston Children's Hospital

🇺🇸

Boston, Massachusetts, United States

University of Minnesota

🇺🇸

Minneapolis, Minnesota, United States

Newark Beth Israel

🇺🇸

Newark, New Jersey, United States

Weill Cornell Medical Hospital

🇺🇸

New York, New York, United States

University of North Carolina - Chapel Hill

🇺🇸

Chapel Hill, North Carolina, United States

Cincinnati Children's Hospital

🇺🇸

Cincinnati, Ohio, United States

University Hospitals Cleveland

🇺🇸

Cleveland, Ohio, United States

Nationwide Children's Hospital

🇺🇸

Columbus, Ohio, United States

Oregon Health & Sciences University

🇺🇸

Portland, Oregon, United States

Penn State Hershey Medical Center

🇺🇸

Hershey, Pennsylvania, United States

University of Pennsylvania

🇺🇸

Philadelphia, Pennsylvania, United States

Cook Children's Hospital

🇺🇸

Fort Worth, Texas, United States

The University of Texas Health Science Center at Houston-Gulf States Hemophilia & Thrombosis Center

🇺🇸

Houston, Texas, United States

University of Utah

🇺🇸

Salt Lake City, Utah, United States

Bloodworks NW

🇺🇸

Seattle, Washington, United States

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