TANNE: Telemedicine responses to neuropalliative demands in real time
Not Applicable
- Conditions
- neuropalliative care diseasesparkinson diseaseSpinal muscular atrophy and related syndromesMalignant neoplasm of brainOther degenerative diseases of basal gangliaMultiple sclerosisstatus epilepticusSecondary malignant neoplasm of brain and cerebral meningesSecondary malignant neoplasm of brain and cerebral meningesHuntington disease
- Registration Number
- DRKS00027436
- Lead Sponsor
- Krankenhaus Agatharied
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 122
Inclusion Criteria
Patients with an underlying neurological condition and patients with neurological symptoms and an underlying non-neurological condition
- signed informed consent form
- Care provided by an SAPV team or as a patient in a hospice
Exclusion Criteria
- <18 years
- Pregnant women
- Patients living outside of Bavaria
Study & Design
- Study Type
- interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Intraindividual improvement in symptom burden (iPOS) before and after teleconsil and compared with neurological patients in the unaccompanied control group.
- Secondary Outcome Measures
Name Time Method Quantitative data: Quality of life applicability of telemedicine system/satisfaction with system patient and team; <br>Technology affinity/readiness, team, consiliaries; team, consiliaries; <br>Time pressure (team, consiliars); team attitude; team cooperation; team participation; telemedicine application -user friendliness team. <br>Work organization teleconsil, consiliars; <br>Utilization of medical and nursing services in group comparison. Induced utilization of medical resources in group comparison.<br>Qualitative data: Job satisfaction in SAPV teams, patient and family satisfaction based on semi-structured qualitative interviews.