Community-based End-of-Life Intervention for African American Dementia Caregivers
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Encephalopathy, Ischemic
- Sponsor
- University of Illinois at Chicago
- Enrollment
- 355
- Primary Endpoint
- Knowledge of dementia
- Status
- Completed
- Last Updated
- 6 years ago
Overview
Brief Summary
In a community-based approach, the investigators long-term goal is to empower African American family caregivers who are designated healthcare proxies to make informed end-of-life treatment decisions for participants with moderate to severe dementia before a life-threatening medical crisis occurs.
Detailed Description
The investigators conducted a randomized controlled trial for efficacy of the Advance Care Treatment Program in an African American church-based community model. The investigators compared the effect of the experimental and control groups on knowledge, self-efficacy, intentions and behaviors from 4 urban African American churches randomly assigned to experimental (n=2) or control (n=2) conditions,304 (experimental n=152; control (n=152) health care proxies of participants that have advanced stage dementia: (a) were concurrently recruited in small classes each with 8-9 healthcare proxies.
Investigators
Gloria J. Bonner
Principal Investigator
University of Illinois at Chicago
Eligibility Criteria
Inclusion Criteria
- Not provided
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
Knowledge of dementia
Time Frame: Three years
Knowledge of Dementia Scale measures Knowledge of dementia with 17 dichotomous true/false items, maximum total score = 17 and Cronbach's α=.76. Higher scores indicate greater practical understanding of dementia knowledge
Knowledge of cardiopulmonary resuscitation (CPR), mechanical ventilation (MV), tube feeding (TF)
Time Frame: Three years
Knowledge of CPR, MV, and TF Scale mmeasures CPR, MV and TF with 18-items Likert (5-point) and yes/no questions. Higher scores indicate increased general knowledge of CPR, MV and TF.
Self efficacy
Time Frame: Three years
Confidence in Treatment Decisions Made Scale measures self-efficacy on decision choices for CPR, MV, and TF with12-item Likert scale (1=extremely comfortable to 5=not at all comfortable) and Cronbach α=.93
Intention to make a Care Plan
Time Frame: Three years
Treatment Decisions Questionnaire measured Intention to make a Care Plan using the 3-item dichotomous (yes/no) items on each CPR, MV and TF.
Secondary Outcomes
- Written Care Plan(3 years)