Home-based occupational therapy for adults with both Down syndrome and dementia and their caregivers

Not Applicable

Withdrawn

• Conditions: Down syndrome; dementia; Physical Medicine / Rehabilitation - Occupational therapy; Human Genetics and Inherited Disorders - Down's syndrome; Neurological - Dementias

• Registration Number: ACTRN12618001463268
• Lead Sponsor: niversity of South Australia

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2018-08-30
• Last Update Posted: 11 November 2019

Recruitment & Eligibility

• Status: Withdrawn
• Sex: All
• Target Recruitment: 6

Inclusion Criteria

1) Inclusion criteria for participants with both Down syndrome and dementia:
-Confirmed medical diagnosis of both Down syndrome and dementia.
-Report of requiring assistance with daily activities, which includes self-care, productivity and leisure (Creek & Lawson-Porter, 2010).
-Living within the metropolitan area of Adelaide.
-Living in their own homes with their informal caregiver(s) or residing in close proximity to informal caregiver(s) who provide daily care and support.
-English speaking or if informal caregiver could speak English.
-Provides verbal consent to participate if capable.

2) Inclusion criteria for informal caregiver participants:
-Participants consider themselves as informal caregiver for the person with both Down syndrome and dementia.
-Who provide continuing daily care and support to their family member with both Down syndrome and dementia.
-English speaking.
-Consents to the study.

Exclusion Criteria

Exclusion criteria for participants with both Down syndrome and dementia :
-Pre-existing diagnosis of mental health issues (e.g. Depression or anxiety), as it may mask the clinical problems related to dementia..
-Having an active Occupational Therapy or Physiotherapy interventions for dementia prior to or during the study.
-Not living within the metropolitan area of Adelaide.
-Does not consent to the study.
2) Exclusion criteria for informal caregiver participants:
-Does not consent to the study.

Study & Design

• Study Type: Interventional
• Study Design: Not specified