Patient navigators in children with chronic kidney disease
- Conditions
- Children with chronic kidney diseaseRenal and Urogenital - Kidney disease
- Registration Number
- ACTRN12618001152213
- Lead Sponsor
- The University of Queensland
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Active, not recruiting
- Sex
- All
- Target Recruitment
- 162
Specifically, to be eligible for the study, participants must satisfy all of the below criteria:
1. Children with CKD (1-5), or CKD-D or CKD-T,
2. Aged 0-16 years, and
3. Low SES background and/or living in rural/remote areas . Low SES families are defined as the following: a. Weekly household income (less than the median gross household income, $1250 (AUD) per week), b. Just getting along, poor or very poor self-perceived financial status, c. Single parenting on social benefits, d. Both parents are unemployed, e. Families living in public housing.
Rural/remote areas are classified as having post code in RA2-RA5 area.
4. Caregiver(s) speak English or caregiver(s) speaks a little English but has a family member who can speak English
5. Able to provide consent by the caregiver (and assent- if the child is of 16 years of age)
6. Only one sibling from a family can be included in the study
1. Limited life expectancy of less than 12 months
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method