nresolved grief in parents of children with cystic fibrosis (CF): A pilot randomised controlled trial on the use and delivery sequence of disease-related education and psychotherapeutic support
- Conditions
- nresolved grief in relation to a child's diagnosis of cystic fibrosisRespiratory - Other respiratory disorders / diseasesMental Health - Studies of normal psychology, cognitive function and behaviourUnresolved grief in relation to a child's diagnosis of cystic fibrosisHuman Genetics and Inherited Disorders - Cystic fibrosis
- Registration Number
- ACTRN12621000796886
- Lead Sponsor
- Princess Margaret Hospital for Children
- Brief Summary
1. Research question: Can unresolved grief related to the diagnosis of a child with cystic fibrosis (CF) be resolved with education and/or insight oriented psychotherapy? 2. Background information: Diagnosis of chronic disease in a child can result in unresolved grief (UG) in parents. Such UG can be prevalent in parents of children with cystic fibrosis 3. Participant characteristics: parents of children with CF 4. Key results: UG is a significant burden for families affected by CF. Provision of disease related education and psychological support, regardless of sequence, can result in resolution of grief. 5. Limitations: the study mostly included mothers. There is a need to do similar research with more fathers. - Such unresolved grief can be present more than a decade after diagnosis and be associated with stress and anxiety
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- All
- Target Recruitment
- 22
Parent of a child with cystic fibrosis aged 6 months - 18 years with unresolved grief as diagnosed with Reaction to Diagnosis Interview
Living in a geographical location too far from the hospital (study site) to allow participation in the study.
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method