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临床试验/NCT02311270
NCT02311270已完成不适用

Survey on Cardiovascular Events in Patients With Metabolic Disease on Chronic Carnitine Supplementation

University of South Florida1 个研究点 分布在 1 个国家目标入组 106 人开始时间: 2014年9月最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
入组人数
106
试验地点
1
主要终点
Assess how many patients with metabolic disorders are on chronic carnitine supplementation.

研究概览

简要总结

The purpose of this study is to learn about the effects of long term carnitine use in patients with metabolic disorders and its potential relationship to cardiovascular events.

详细描述

This online cross-sectional survey will examine the self-reported long-term carnitine use in patients with metabolic disorders and any potential relationship to cardiovascular events.

研究设计

研究类型
Observational
观察模型
Cohort
时间视角
Cross Sectional

入排标准

性别
All
接受健康志愿者

入选标准

  • Diagnosis of mitochondrial disease or any other metabolic disorder
  • Any age group
  • NAMDC or RDCRN registry participant

排除标准

  • Inability to provide informed consent and complete survey
  • Lack of participation in NAMDC or RDCRN registry

结局指标

主要结局

Assess how many patients with metabolic disorders are on chronic carnitine supplementation.

时间窗: Up to one year from study activation.

次要结局

  • Assess how many patients who are on chronic carnitine supplementation have experienced a cardiovascular event.(Up to one year from study activation)

研究者

申办方类型
Other
责任方
Sponsor

研究点 (1)

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