Development of a Culturally Tailored Digital Resilience-Building Intervention for East Asian Immigrants With Cancer to Facilitate Advance Care Planning Discussions
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 76
- 试验地点
- 1
- 主要终点
- Usability
研究概览
简要总结
The purpose of the study is to develop a culturally tailored digital resilience-building intervention to help East Asian immigrants engage in advance care planning discussions with their family caregivers.
详细描述
Advance care planning (ACP) is a process to facilitate decision-making for future care and document values and preferences. However, the advance directive completion rates in East Asian Americans are low, which may extend to disparities in end-of-life care, including rates of hospice use and prevalence of unwanted aggressive treatments. To address this, this study uses information technology to develop a culturally tailored digital resilience-building intervention with and for East Asian immigrants to help them engage in ACP discussions. There are two aims of this study: (1) Conduct semi-structured interviews with a total of 30 religious leaders to identify the barriers and facilitators associated with discussing ACP and death-related topics with immigrants from China/Taiwan, Japan, and Korea and (2) Develop a culturally tailored digital resilience-building intervention using think-aloud interviews with 27 pairs of East Asian immigrants with cancer and their family caregivers (9 pairs each for immigrants from China/Taiwan, Japan, and Korea).
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 80 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •for Religious Leaders:
- •Age ≥ 18 years
- •Serving as a chaplain or religious leader at a healthcare setting or religious organization
- •Having experience providing pastoral or spiritual care to Chinese, Japanese, and Korean Americans in the US
- •Being able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean.
排除标准
- •Not willing to provide consent.
- •Inclusion Criteria for Patients:
- •Age ≥ 18 years
- •Having a cancer diagnosis
- •Likely self-identifying as a Chinese, Japanese, or Korean American/immigrant
- •Being able to read and respond to questions in either English, Mandarin, Japanese, Korean, or Chinese dialects, such as Cantonese, Shanghai, Taishanese, or Taiwanese.
- •Exclusion Criteria for Patients:
- •Having cognitive impairment per the Short Portable Mental Status Questionnaire with more than three errors
- •Inclusion Criteria for Family Caregivers:
- •Age ≥ 18 years
- •Being able to read and respond to questions in either English, Mandarin, Japanese, Korean, or Chinese dialects, such as Cantonese, Shanghai, Taishanese, or Taiwanese
- •Having a family member who is likely to self-identify as a Chinese, Japanese, or Korean American/immigrant and has been diagnosed with cancer
研究组 & 干预措施
Culturally Tailored Digital Resilience-Building
The culturally tailored resilience-building materials will be provided to East Asian immigrants with cancer and their family caregivers.
干预措施: Culturally Tailored Digital Resilience-Building (Behavioral)
Religious leaders
Religious leaders providing spiritual care to Asian Americans
干预措施: Semi-structured interviews (Behavioral)
结局指标
主要结局
Usability
时间窗: Immediately at the end of the think-aloud interview
Use the System Usability Scale (range: 0-100) to assess the usability of the intervention. Higher scores indicate greater perceived usability by users.
次要结局
- Acceptability(Immediately at the end of the think-aloud interview)
研究者
Li-Ting Longcoy
Postdoctoral Research Associate/Principal Investigator
University of Illinois at Chicago