Patient survey on medical care of rare mucosal/skin diseases

Recruiting

• Conditions: L73.2; L43.8; Hidradenitis suppurativa; Other lichen planus

• Registration Number: DRKS00027414
• Lead Sponsor: niversitätsmedizin Göttingen

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2021-12-07
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 240

Inclusion Criteria

1) Patients with physician-diagnosed rare mucosal/skin disease (hidradenitis suppurativa or oral lichen planus)
2) Age = 18 years
3) Written informed consent
4) Ability to understand and complete the questionnaires

Exclusion Criteria

1) Lacking written informed consent
2) Age < 18 Jahre

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
The aim of the study is to characterize the patient journey and routine clinical care of patients with rare mucosal/skin diseases (hidradenitis suppurativa and oral lichen planus) in Germany.

Secondary Outcome Measures

Name	Time	Method
Investigation of patient and diseases characteristics