It is a study where regular teaching & mentoring will be done by experts via video calling/teleconsultation to junior doctors who will taking care of terminally ill cancer patients at hospital as well as in community based home care.
- Conditions
- Health Condition 1: C00-D49- Neoplasms
- Registration Number
- CTRI/2021/08/035332
- Lead Sponsor
- M D Anderson Cancer Centre University of Texas USA
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot Yet Recruiting
- Sex
- Not specified
- Target Recruitment
- 0
Patient:
1. Scheduled to receive treatment at participating primary care practice for advanced cancer
2. 18 years or older (more than 18 years to 90 years)
3. Willing to be accessible to the research team for follow-up by telephone or in person
4. Prognosis of at least 1 year as ascertained by the treating physician
5. Able to read and understand English as assessed by the treating physician.
Caregiver:
1. Identified or self-identified as primary caregiver of the patient
2. Willing to be accessible to the research team for follow-up by telephone or in person
3. 18 years or older
4. Able to read and understand English as assessed by the treating physician.
ECHO Participant:
1. Participant must be a health care provider interested to participate in the study for 2 years and understand the protocol and provide consent.
2. Able to read and understand English as assessed by PI
1. Unable to understand and sign consent.
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Patient Outcomes: At each time point, we will measure 25 patients per site. <br/ ><br>The Edmonton Symptom Assessment Scale Distress Score (ESAS-SDS) will be used to measure symptom distress. <br/ ><br>Health related quality of life (HRQOL) will be assessed using the Functional Assessment of Cancer Therapy-General (FACT-G) questionnaire. <br/ ><br> <br/ ><br>Caregiver Outcomes: We will measure 25 caregivers per site. Experience with care will be assessed using the FAMCARE scale <br/ ><br>Timepoint: 24 months
- Secondary Outcome Measures
Name Time Method The objective is to determine the effect of ECHO-PCT on providersâ?? (2 per site) efficacy in knowledge of and competence to deliver Palliative Care to Patients. For this objective the data will be summarized by descriptive statistics at baseline, year 1 and 2 of ECHO-PCT by completing the Palliative Care Participant Initial Survey (Appendix Q) and Palliative Care Participant Follow Up Survey (Appendix R).Timepoint: 24 months