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Clinical Trials/EUCTR2011-001953-10-DE
EUCTR2011-001953-10-DE
Active, not recruiting
Phase 1

A phase 2/3 study of the efficacy and safety of hematopoietic stem cells transduced with Lenti D lentiviral vector for the treatment of cerebral adrenoleukodystrophy (CALD)

bluebird bio, Inc.0 sites32 target enrollmentDecember 11, 2017

Overview

Phase
Phase 1
Intervention
Not specified
Conditions
Cerebral Adrenoleukodystrophy (CALD)
Sponsor
bluebird bio, Inc.
Enrollment
32
Status
Active, not recruiting
Last Updated
5 years ago

Overview

Brief Summary

No summary available.

Registry
who.int
Start Date
December 11, 2017
End Date
TBD
Last Updated
5 years ago
Study Type
Interventional clinical trial of medicinal product
Sex
Male

Investigators

Eligibility Criteria

Inclusion Criteria

  • 1\. Informed consent is obtained from a competent custodial parent or guardian with legal capacity to execute a local IRB/Independent Ethics Committee (IEC) approved consent (informed assent will be sought from capable subjects, in accordance with the directive of the IRB/IEC and with local requirements).
  • 2\. Males aged 17 years and younger, at the time of parental/guardian consent and, where appropriate, subject assent.
  • 3\. Active cerebral ALD as defined by:
  • \-Elevated VLCFA values, and
  • \-Active CNS disease established by central radiographic review
  • of brain MRI demonstrating:
  • i. Loes score between 0\.5 and 9 (inclusive) on the 34\-point scale, and
  • ii. Gadolinium enhancement on MRI of demyelinating lesions.
  • 4\. Neurological Function Score (NFS) \= 1\.
  • Are the trial subjects under 18? yes

Exclusion Criteria

  • 1\. Receipt of an allogeneic transplant or gene therapy.
  • 2\. Availability of a willing 10/10 HLA\-matched sibling donor (excluding female heterozygotes).
  • 3\. Use of statins, Lorenzo's Oil, or dietary regimens used to lower VLCFA of consent.
  • 4\. Receipt of an investigational study drug or procedure within 3 months before Screening that might confound study outcomes. Use of investigational study drugs is prohibited throughout the course of the study.
  • 5\. Any conditions that make it impossible to perform MRI studies (including allergies to anesthetics or contrast agents).
  • 6\. Hematological compromise as evidenced by:
  • \- Peripheral blood ANC count \< 1500 cells/mm3,
  • \- Platelet count \< 100,000 cells/mm3, or
  • \- Hemoglobin \< 10 g/dL.
  • \- Uncorrected bleeding disorder.

Outcomes

Primary Outcomes

Not specified

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