Health-related quality of life of children, adolescents, and adults after diagnosis of meningioma in childhood and adolescence

• Conditions: D32.0; Cerebral meninges

• Registration Number: DRKS00031002
• Lead Sponsor: Klinikum Oldenburg AöR, Universitätsklinik für Kinder- und Jugendmedizin, Allgemeine Kinderheilkunde, Hämatologie und Onkologie, Studienzentrale Kraniopharyngeom

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2022-12-29
• Study Completion: 2023-03-31
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 35

Inclusion Criteria

Existing participation in the HIT-ENDO, KRANIOPHARYNGEOM 2000/2007, or KRANIOPHARYNGEOM Registry 2019 (26) studies
- Diagnosis of meningioma before the age of 18 years
- Histological or image morphological confirmation of the meningioma
- Completed therapy for the meningioma or no therapy

Exclusion Criteria

- Current age < 10 years
- Patients under current oncological therapy for meningioma

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Health-related quality of life from the study population compared with a normative reference population.

Secondary Outcome Measures

Name	Time	Method
Influences of different therapies, etiologies, histologies, WHO grades, tumor localizations, as well as time distance to diagnosis on health-related quality of life are investigated. In addition, the health-related quality of life of meningioma patients will be compared with craniopharyngeal patients.