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Genetic and Radiological Screening of First Degree Family Members of Patients with Familial Liver Adenomatosis

Conditions
benign liver tumor
liveradenomatosis
10019806
10019654
10019813
Registration Number
NL-OMON31682
Lead Sponsor
Academisch Medisch Centrum
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Pending
Sex
Not specified
Target Recruitment
40
Inclusion Criteria

1. Patients diagnosed with liver adenomatosis by histology or imaging studies
2. First line family members of 1.
2. Minimal age 18 years old
3. Informed consent must be obtained

Exclusion Criteria

1. Patients under 18 years of age
2. Patients who are pregnant
3. Patients who are claustrofobic (MRI)
4. Patients who have magnetic or radiofrequency sensitive implants (MRI)
5. Patients with extreme obesity (MRI+US)

Study & Design

Study Type
Observational invasive
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
<p>- Hepatic lesions on ultrasound and/or contrast-MRI in all patients<br /><br>- Genetic abnormalities (CYP1B1, HNF-1 alpha, ß catenin) in LA index-patients<br /><br>- Genetic abnormalities in first line relatives of LA patients diagnosed with<br /><br>germline mutations.<br /><br>- Genetic abnormalities in first line relatives diagnosed with adenomas on<br /><br>imaging studies</p><br>
Secondary Outcome Measures
NameTimeMethod
<p>-Hepatic fat content (MRS) and metabolic profile (blood analysis) in LA patients<br /><br>-Hepatic fat content (MRS) and metabolic profile (blood analysis) in first<br /><br>degree familymembers with germlinemutations and/or adenomas on imaging studies.</p><br>
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