Clinical European study on the outcome of surgical and hormonal therapy and psychological intervention in disorders of sex development (DSD)

Recruiting

• Conditions: Q96; Q97; Q98; Q99; Turner syndrome; Other sex chromosome abnormalities, female phenotype, not elsewhere classified; Other sex chromosome abnormalities, male phenotype, not elsewhere classified; Other chromosome abnormalities, not elsewhere classified

• Registration Number: DRKS00006072
• Lead Sponsor: Charité - Universitätsmedizin Berlin Campus Virchow-Klinikum Institut für Experimentelle Pädiatrische Endokrinologie

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2014-04-17
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 1500

Inclusion Criteria

• People with aberrations of the sex chromosomes, XY DSD and DSD YX. • Persons with capacity to consent.

Exclusion Criteria

• People with inadequate cognitive skills for independent answering the questionnaires.

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Factors that influence the psychosocial adjustment, including HRQoL and the social and psychological well-being for the future clinical care.

Secondary Outcome Measures

Name	Time	Method
Factors that influence metabolism, fertility, surgical results and psychosexual development in order to adjust them in the future clinical care.