Peer Support Groups for Families With an Infant in the NICU
- Conditions
- StressAnxiety
- Interventions
- Behavioral: Participant guided peer support gathering
- Registration Number
- NCT05988996
- Lead Sponsor
- Oregon Health and Science University
- Brief Summary
The goal of this observational study is to learn the impact of race, ethnicity, and language matched peer support groups on parental stress, anxiety, and sense of belonging for families who have or have had an infant hospitalized in the Neonatal Intensive Care Unit (NICU). The main questions aim to answer: Do race, ethnicity, and language matched peer support groups decrease parental stress and anxiety and improve sense of belonging of parents while their baby is hospitalized in the NICU? And, are there any changes that should be made to the format of the peer support group sessions?
Participants will be invited to attend a peer support group that is matched for race, ethnicity, and language. Participants will have the option of filling out a survey on stress, anxiety, and sense of belonging before and after the peer group session. Additionally, participants will have the option of filling out a satisfaction survey after the peer group session.
- Detailed Description
The study will be observational research wherein participants who want to attend a peer support group, will have the option of filling out surveys before and after peer support group attendance. Surveys are voluntary and the only way of assessing the behavioral outcome (impact on parental stress, anxiety, and sense of belonging); families can attend the peer support groups even if the family member does not want to participate in the survey.
Recruitment & Eligibility
- Status
- ENROLLING_BY_INVITATION
- Sex
- All
- Target Recruitment
- 100
- Parental or guardian self-identified as Black, African American, African, Latino, Hispanic, Chicano
- Parent or guardian of infant that was or is admitted to Oregon Health & Science University, Randall Children's Hospital, or Providence Health NICU in Portland, OR
- Parent or guardian age less than 18 years old
- Preferred language other than English or Spanish (including if preferred communication is sign language)
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description African American and Black Participant guided peer support gathering One cohort includes families that identify as Black, African American, or African attending the racially concordant peer group sessions. Latino English Preferred Participant guided peer support gathering One cohort includes families that identify as Latino, Hispanic, Chicano and language preference of English attending the ethnically concordant peer group sessions. Latino Spanish preferred Participant guided peer support gathering One cohort includes families that identify as Latino, Hispanic, Chicano and language preference of Spanish attending the ethnically and linguistically concordant peer group sessions.
- Primary Outcome Measures
Name Time Method Parental stress 1 week prior to 2 days after peer group session The degree of parental stress in the NICU will be assessed using the Parental Stressor Scale: Neonatal Intensive Care Unit validated tool. The minimum and maximum values are 26 and 130 respectively, with higher scores indicating higher parental stress.
- Secondary Outcome Measures
Name Time Method Parental sense of belonging 2 days after peer group session Sense of belonging will be assessed with three non-validated questions about community and within NICU sense of belonging questions. The scoring system is a 5-point Likert scale with an option for "Not Applicable". The minimum and maximum score are 3 and 15 respectively, with higher scores indicating greater sense of belonging.
Trial Locations
- Locations (1)
Oregon Health & Science University
🇺🇸Portland, Oregon, United States