NCT00966927
Active, not recruiting
Not Applicable
Assessment of Functional Independence and Quality of Life in Italian Population of Adolescents With Spina Bifid
Azienda USL Reggio Emilia - IRCCS1 site in 1 country41 target enrollmentJuly 1, 2021
ConditionsSpinal Dysraphism
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Spinal Dysraphism
- Sponsor
- Azienda USL Reggio Emilia - IRCCS
- Enrollment
- 41
- Locations
- 1
- Primary Endpoint
- correlation between the quality of life in adolescents and young adults with Spina Bifid and their level of functional independence
- Status
- Active, not recruiting
- Last Updated
- 10 months ago
Overview
Brief Summary
The purpose of this study is to investigate the level of functional independence and the quality of life of adolescents and young adults with spina bifid in an Italian population.
Detailed Description
We submitted the Quality of Life in spina bifid Questionnaire to subjects who participated in the study and the Spinal Cord Independence Measure to the parents of subjects.
Investigators
Eligibility Criteria
Inclusion Criteria
- •recurrence of clinic control in Unit for Spina Bifid in Parma
- •14-21 years old
Exclusion Criteria
- •subjects unable to understand the items of the questionnaire (mental retardation and need for help at school )
- •subjects without any caregiver
Outcomes
Primary Outcomes
correlation between the quality of life in adolescents and young adults with Spina Bifid and their level of functional independence
Time Frame: 5 months
Secondary Outcomes
- correlation between functional level of independence and motor level of neurological lesion(5 months)
Study Sites (1)
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