Collection of data on childhood cancer patients below 19 years age from hospitals participating in the Indian Pediatric Hematology Oncology Group (INPHOG), for establishing a dedicated childhood cancer registry database.
Not Applicable
- Conditions
- Health Condition 1: C00-D49- Neoplasms
- Registration Number
- CTRI/2024/05/067345
- Lead Sponsor
- Cancer Institute (W.I.A)
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot Yet Recruiting
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
1. All cancers and non-malignant brain tumors in children aged less than or equal to 19 years.
2. Registered and treated at the INPHOG center.
3. Parents/Patient consenting for use of data for the registry.
Exclusion Criteria
1. Patients who are not treated at the INPHOG center including those who come for second opinions.
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method 1. Establish a dedicated INPHOG HBCCR. <br/ ><br>2. Establish a network of HBCCR stakeholders. <br/ ><br>3. Ensure high-quality and complete data collection using a common form. <br/ ><br>4. Collaboration with pediatric oncologists in India through INPHOG for successful implementation of the registry. <br/ ><br>Timepoint: Yearly follow-up for 5 years from date of enrollement in the registry.
- Secondary Outcome Measures
Name Time Method 1. Serve as a benchmark for expanding the registry to include all pediatric cancer centers in India. <br/ ><br>Timepoint: 2 years from the start of the INPHOG HBCCRs project