Evaluation of a Therapeutic Education Program on Self-image in Patients With Chronic Inflammatory Rheumatic Diseases
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 入组人数
- 60
- 试验地点
- 1
- 主要终点
- To evaluate a therapeutic patient education intervention focused on self-image in patients with chronic inflammatory rheumatic diseases
研究概览
简要总结
Chronic inflammatory rheumatic diseases (CIRD), like all chronic somatic disease, can impair self-esteem and self-image in affected individuals. Numerous studies conducted in this population have confirmed this fact. Therapeutic patient education (TPE) programs aim to help patients acquire self-care and adaptive skills. However, there is a near-total absence of workshops specifically dedicated to self-image in TPE programs for CIRD. Such educational interventions have shown their effectiveness in contexts such as cancer and obesity. Our study aims to evaluate their effectiveness for patients with CIR.
详细描述
A chronic disease is a long-term, progressive illness that affects the daily life of the person affected. The onset of the disease is a major upheaval, a moment of rupture between a before and an after. Physical functions and appearance can be altered by the disease (deformities, stiffness… in the case of rheumatic diseases) and by treatments.
According to Schilder, body image is "the way our body appears to ourselves." It can be defined as the set of perceptions, emotions, and thoughts related to appearance. It consists of perceptions but also of representations and feelings, which are built and evolve throughout the individual's experience. It is not limited to physical appearance and properties. It is the foundation of identity.
The disease affects the body, but also has an impact on self-perception, self-esteem, and even identity.
The literature highlights the importance of using qualitative research in addition to quantitative methods to grasp the full complexity of body image.
Despite the progress and effectiveness of treatments, recent studies showed that patients with chronic inflammatory rheumatic diseases (CIRD) have an unsatisfactory, disturbed body image. Literature data also reveal that self-esteem and quality of life in this population are lower than in the general population.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Age ≥ 18 years
- •Suffering from chronic inflammatory rheumatism (rheumatoid arthritis, spondyloarthritis, psoriatic arthritis)
- •Having agreed to follow the therapeutic education programme offered by the department as part of routine care
- •Not opposed to participating in the research
排除标准
- •People who do not speak or read French
- •Current pregnancy
结局指标
主要结局
To evaluate a therapeutic patient education intervention focused on self-image in patients with chronic inflammatory rheumatic diseases
时间窗: 3 months following completion of the 'self-image' module
Multidimensional Body-Self Relations Questionnaire (MBSRQ)
次要结局
- To evaluate a therapeutic patient education intervention on each domain of self-image(3 months following completion of the 'self-image' module)
- To evaluate a therapeutic patient education intervention focused on self-image in relation to self-esteem.(3 months following completion of the 'self-image' module)
- To evaluate a therapeutic patient education intervention focused on self-image in relation to quality of life.(3 months following completion of the 'self-image' module)
- To explore body image in patients after participating in therapeutic education workshops on self-image.(4 months following completion of the 'self-image' module)