NCT01123694Unknown不适用
Xeroderma Pigmentosum: A Survey of Patient Experiences
适应症
试验速览
- 阶段
- 不适用
- 入组人数
- 15
- 试验地点
- 1
研究概览
简要总结
Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Confirmed diagnosis of xeroderma pigmentosum
- •Access to a public or private computer
排除标准
- •Patients who do not have a confirmed diagnosis of XP
- •Patients under 18 who do not have a parent/guardian able to read or speak English
- •Patients who are unable to read or speak English
研究者
研究点 (1)
Loading locations...
相似试验
Unknown
3 期
T4N5 Liposome Lotion Compared With Placebo Lotion for Preventing Actinic Keratoses in Patients With Xeroderma PigmentosumPrecancerous ConditionNCT00002811Applied Genetics30
已完成
不适用
XPAND Trial: Enhancing XP Photoprotection Activities - New DirectionsXeroderma PigmentosumNCT03445052Guy's and St Thomas' NHS Foundation Trust15
已完成
不适用
Cancer Risk in Carriers of the Gene for Xeroderma PigmentosumXeroderma PigmentosumBasal Cell CarcinomaMelanomaSkin CancerSquamous Cell CarcinomaNCT00046189National Cancer Institute (NCI)301
Unknown
不适用
Characterization of Pseudoxanthoma ElasticumPseudoxanthoma ElasticumNCT02108392University Hospital, Bonn100
已完成
不适用
Examination of Clinical and Laboratory Abnormalities in Patients With Defective DNA Repair: Xeroderma Pigmentosum, Cockayne Syndrome, or TrichothiodystrophySkin NeoplasmsXeroderma PigmentosumTrichothiodystrophy SyndromesGenodermatosisCockayne SyndromeNCT00001813National Cancer Institute (NCI)709