How Would the Creation of a Follow-up Methodology in Consultation Improve the Care of the Epileptic Patient?
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 15
- 试验地点
- 1
- 主要终点
- Identify the informative and educational needs of epileptic patients to avoid disrupting the therapeutic course by an interview with an nurse.
研究概览
简要总结
The goal of this observationnal study is to identify the informative and educational needs of epilepsy patients to avoid interrupting the therapeutic pathway.
The main question it aims to answer are :
- Identify the patient's expectations of a nurse specializing in epilepsy in the areas of information, predictive elements of good care and adaptation to their state of health
- Identify under-addressed or misunderstood themes
- Identify patient resources and interventions already in place
- Ensuring better continuity of care
- Improve the knowledge of patients and their relatives about the management of their pathology
After a consultation with the neurologist (as part of their usual follow-up), the participants will be referred to a nurse for a semi-directive, individual interview, lasting 30 minutes and composed of open and closed questions. The announcement of the diagnosis, the quality of life or the factors contributing to the difficulties and their repercussions on a daily basis will be discussed during the interview.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Adult epileptic patients, over 18 years old
- •Patients with focal or generalized epilepsy
- •Patients affiliated or entitled to a social security scheme
- •Patients who have received informed information about the study and who have co- signed, with the investigator, a non-objection to participation in the study
- •Patients whose diagnosis has been made for at least 6 months
排除标准
- •Patients with intellectual disabilities
- •Untreated patients, in remission
- •Patients without affiliation to a social security scheme
- •Patients under guardianship or curatorship
结局指标
主要结局
Identify the informative and educational needs of epileptic patients to avoid disrupting the therapeutic course by an interview with an nurse.
时间窗: At inclusion
次要结局
未报告次要终点