NCT05137379已完成不适用
Evaluation of a Cohort of Patients With Ehlers-Danlos Syndrome Treated With Orthopedic Surgery (SED-eval)
适应症
干预措施
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 200
- 试验地点
- 2
- 主要终点
- Joint function score according to the affected joint
研究概览
简要总结
The aim of this study is to assess the joint involvement (shoulder - ankle - knee - elbow - wrist) in patients with Ehlers-Danlos Syndrome and treated by surgery.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patient over 18 years-old suffering from Ehlers-Danlos Syndrome and belonging to the EDS cohort of Raymond Poincaré Hospital in Garches
- •Patient with joint involvement of the shoulder treated by surgery
- •Patient with ankle joint damage treated by surgery
- •Patient with joint damage to the knee treated by surgery
- •Patient with elbow joint damage treated by surgery
- •Patient with joint involvement of the wrist treated by surgery
- •Patient affiliated or beneficiary of a social security scheme
- •Patient who has been informed of the research and does not object to the use of his data.
排除标准
- •Patient objecting to the use of their data
研究组 & 干预措施
Elher-Danlos syndrome patients treated with orthopedic surgery
干预措施: A joint functional score based on the affected joint (Behavioral)
结局指标
主要结局
Joint function score according to the affected joint
时间窗: 1 day
A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,: * Shoulder (SSV; QuickDash),
次要结局
未报告次要终点
研究者
研究点 (2)
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