ISRCTN56845190进行中（未招募）Unknown
Developing and testing a toolkit of interventions to improve adherence to non-invasive ventilation in children: a mixed methods study (The SPIRITUS study)
适应症
试验速览
- 阶段
- Unknown
- 状态
- 进行中（未招募）
- 入组人数
- 46
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Interventional
入排标准
- 性别
- All
入选标准
- •Phases 1, 2 and 3:
- •Children and young people:
- •1. Age 0-18 years
- •2. Diagnosis of sleep disordered breathing
- •3. Have been prescribed NIV >3 months prior to recruitment
- •4. Under the care of the study site NIV team
- •Parents and carers:
- •1. Parents/carers (adults with parental responsibility) of the above children
- •1. Study site staff who provide NIV care (medical, nursing, allied health professionals, health care assistants, sleep-unit technicians, physiologists)
排除标准
- •Phases 1 and 2:
- •1. Children and young people
- •2. Medically dependent on NIV
- •3. Receiving NIV for palliation
- •4. Use of NIV for <3 months
- •5. Weaning off NIV
- •Parent members of the SPIRITUS Study Steering Group
- •Study Site staff who do not work in Study Site NIV service
- •Children and young people:
- •1. Medically dependent on NIV
- •2. Receiving NIV for palliation
- •3. Use of NIV for <3 months
- •4. Weaning off using NIV
- •Parents and carers:
- •1. Parents who do not consent for their child’s participation (even if they consent for their own)
- •2. Parents of children who do not want to take part
- •3. Parents in the PPI Study Steering Group
- •4. Parents who took part in Phases 1 and 2
- •5. Any families involved in intervention development (either PPI activities or the creation of the intervention e.g. a video)
- •6. Parents who have already tested one intervention
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