A Study of The Knowledge and Attitude Towards Epilepsy Among Close Relatives of People With Epilepsy and Their Impact on The Patient's Quality of Life
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 发起方
- 入组人数
- 150
- 试验地点
- 1
- 主要终点
- Knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy.
研究概览
简要总结
Epilepsy is a common neurological condition that affects personal and familial behavior and social support . About 50 million people worldwide suffer from epilepsy and the prevalence of active epilepsy in developing countries is 5 to 10 per 100 persons . Individuals with epilepsy may suffer from psychological issues such as depression, anxiety, and psychosis . Accordingly, living with a person with epilepsy will provide some challenges, particularly at home. Studies have reported that relatives of people with epilepsy have an increased risk of anxiety. Epilepsy can inflict an enormous burden on both the people with epilepsy (PWE) and their family caregivers, decreasing their quality of life and daily efficiency.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 16 Years 至 110 Years（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •The participants Will be the close relatives of people with epilepsy who had a close relationship with the patient and living in the same house. The respondents will include the mothers, fathers, brothers, sisters, or the husband/wife, sons of patients.
- •The patients will be patients diagnosed of epilepsy for at least 6 months, who were using antiepileptic drugs.
排除标准
- •The Relatives not living in the same house or not in direct contact with the patients or younger than 16 years old will be excluded from the study.
- •The persons who had major medical or mental health problems other than epilepsy that would affect QOL will be excluded.
结局指标
主要结局
Knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy.
时间窗: 1 year
This study will be conducted to assess the degree of knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy. A structured questionnaire will be administered to the accompanying relative. The questionnaire will assess this knowledge and the sources that close relatives obtain this knowledge from, including general attitude towards the People with epilepsy, and contains section that assess sigma about epilepsy using Stigma scale of epilepsy.
Quality of life of people with epilepsy.
时间窗: 1 year
We will use the Quality of life in epilepsy-10 inventory (QOLIE-10) as the main collection tool as regard quality of life of people with epilepsy.
次要结局
未报告次要终点
研究者
Mohamed Adel Abdellah
neuropsychiatry resident
Sohag University