Characteristics of Patients with Dystrophic Epidermolysis Bullosa
Completed
- Conditions
- Epidermolysis BullosaButterfly children1004078910014982
- Registration Number
- NL-OMON34434
- Lead Sponsor
- niversitair Medisch Centrum Groningen
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- Not specified
- Target Recruitment
- 20
Inclusion Criteria
1: clinical diagnosis DEB (via IF, EM and DNA)
2: age: 18-85 years
3: except from DEB: good health
4: possibility of adequate communication
5: living in the Netherlands or Belgium (concerning travelling time to UMC Groningen)
Exclusion Criteria
1: minors < 18 y
2: not able to communicate
3: medical instability or limiting ability to travel to UMC Groningen
4: DEB affected patients with co morbidity
5: incapacitated adults
Study & Design
- Study Type
- Observational invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method
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