Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Belgium on Advance Care Planning

Not Applicable

Completed

• Conditions: Advance Care Planning; Ethnic Minorities; Family Caregivers
• Interventions: Other: one to one interviews

• Registration Number: NCT05241301
• Lead Sponsor: Universitair Ziekenhuis Brussel

Brief Summary

In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.

Detailed Description

Whether or not someone wants to engage in ACP, is often the result of a complex interplay of meanings, events, processes and assumptions constructed by the patient and is best approached by qualitative methods. Semi-structured interviews will be used in order to explore the respondents' knowledge about and experience with ACP, also their views concerning ACP for their relatives and how do they prefer to engage in the process of ACP for their relatives will be explored.

Study Timeline

• Study First Submitted: 2022-02-04
• Study First Submitted QC: 2022-02-04
• Study First Posted: 2022-02-15
• Study Start: 2022-03-15
• Status Verified: 2022-05
• Primary Completion: 2022-12-31
• Study Completion: 2023-05-01
• Last Update Submitted: 2023-05-10
• Last Update Posted: 2023-05-11

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 25

Inclusion Criteria

• Family carers of older adults with a Turkish or a Moroccan origin who have participated in our previous studies with NCT03930823 and NCT04335214, as identified by the older adults as the most significant family carer. Older adults in our previous studies were men and women, all 65 years and older and living in Flanders and Brussels.
• and who live in Belgium and are 18 years or older and fluent in French or Dutch language.
• and who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria

• None

Study & Design

• Study Type: INTERVENTIONAL
• Study Design: SINGLE_GROUP

Arm && Interventions

Group	Intervention	Description
One to one interviews with family carers of older people from Turkish and Moroccan origin	one to one interviews	one to one interviews

Primary Outcome Measures

Name	Time	Method
Knowledge of family carers of older adults from Turkish and Moroccan origin about advance care planning	12 months	This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you ever heard of advance care planning? Does that term mean anything to you? What do you know about communicating wishes in advance to family members or doctor and notice this?

Secondary Outcome Measures

Name	Time	Method
Experiences of family carers of older adults from Turkish and Moroccan origin have with engaging in the process of ACP for their relatives	12 months	This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you personally already spoken with some of your relatives about their future wishes what matters to him/her regarding his/her healthcare? If No: why? If yes: how?

Trial Locations

Locations (1)

Faculteit Geneeskunde en Farmacie; 🇧🇪 Brussels, Belgium