Sound and Vision: A Collaboration Between Service-users, Artists and the Public to Explore the Lived Experience of Hallucinations

• Conditions: Schizophrenia; Parkinson Disease; Hallucinations

• Registration Number: NCT04399096
• Lead Sponsor: University of Cambridge

Brief Summary

Sound and Vision: A collaboration between service-users, artists and the public to explore the lived experience of hallucinations

Detailed Description

Sound and Vision will pair local artists with patients who have had hallucinations to create art pieces that represent their hallucinatory experiences. Patients with diagnoses of schizophrenia and Parkinson's disease will be invited to take part in participating National Health Service (NHS) clinics, to capture and compare a wide range of hallucinatory experiences. Patients will meet with artists on several occasions who will then develop the piece, which may be a painting, drawing, or other media that the artist and service-user jointly select.

Completed artworks will be the centrepiece for an exhibition at United Kingdom (UK) science festivals and a digital (on-line) presentation. The exhibition will be accompanied by researchers explaining the brain science of hallucinations, recordings of patients and artists describing their experience with hallucinations and the process of developing the artworks, booklets cataloguing the exhibition, and art materials available for artistic expression of their own experiences. A digital compendium of the artworks and supporting material will be publicly available alongside the opportunity to complete an online survey exploring the themes of the artworks and collecting information on personal experiences. The objectives are to engage the public in an appreciation of the experience of hallucinations and their prevalence across many common mental health and neurodegenerative disorders, as well as an experience many people will share without ever being diagnosed. The exhibition will also encourage the public to share their own experiences through the online questionnaires creating a platform to begin to improve the understanding of the diversity of hallucination-like experiences in the general population.

Study Timeline

• Study First Submitted: 2020-05-13
• Study First Submitted QC: 2020-05-18
• Study First Posted: 2020-05-22
• Study Start: 2020-12-01
• Status Verified: 2021-04
• Last Update Submitted: 2021-04-27
• Last Update Posted: 2021-04-28
• Primary Completion: 2021-12
• Study Completion: 2021-12

Recruitment & Eligibility

• Status: UNKNOWN
• Sex: All
• Target Recruitment: 500

Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
University of Miami Parkinson's disease Hallucinations Questionnaire (UM-PDHQ)	Through study completion, an average of 1 year	The University of Miami Parkinson's disease Hallucinations Questionnaire (UM-PDHQ) is composed of 6 quantitative and 14 qualitative items to define the key characteristics of hallucinations in Parkinson's Disease. The first 6 questions score the severity of hallucinations with a minimum score is zero and a maximum of 14, with greater score indicating greater severity. The remaining 14 questions have qualitative answers.
The Multi-Modality Unusual Sensory Experiences Questionnaire (MUSEQ)	Through study completion, an average of 1 year	The Multi-Modality Unusual Sensory Experiences Questionnaire (MUSEQ) is a 43-item self-report measure with each item rated on a five-point Likert scale, and assesses unusual sensory experiences in six modalities: auditory, visual, olfactory, gustatory, bodily sensations, and sensed presence. The minimum score is zero, the maximum score is 173 with a greater score indicating a higher frequency of unusual sensory experiences.

Trial Locations

Locations (2)

Cambridge and Peterborough NHS Trust; 🇬🇧 Cambridge, Cambs, United Kingdom

Cambridge University Hospital; 🇬🇧 Cambridge, Cambs, United Kingdom