Characterization of Autosomal Dominant Polycystic Kidney Disease (ADPKD) in childhod: retrospective clinical data assessment and evaluatin of psychosocial aspects

• Conditions: Autosomal Dominant Polycystic Kidney Disease (ADPKD); Q61.2; Polycystic kidney, autosomal dominant

• Registration Number: DRKS00009419
• Lead Sponsor: niversitätsklinikum Köln

Brief Summary

Hypertension was a common finding in the cohort. There was an inverse relationsship between kidney function and height-adjusted total kidney volume. The psychosocial questionnaire did not reveal relevant findings in this small cohort.

Detailed Description

Not available

Study Timeline

• Study Start: 2016-01-05
• Study Completion: 2016-12-01
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 25

Inclusion Criteria

Clinical diagnosis of ADPKD

Exclusion Criteria

Uncertain clinical diagnosis. Other cystic kidney diseases.

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
n/a - observational study on clinical course.<br><br>Patient's quality of life will be assessed by a questionnaire (KINDL for the assessment of health related quality of life ) once.<br>

Secondary Outcome Measures

Name	Time	Method
does not apply - purely descriptive