Pulmonary Care and Research Collaborative Patient Registry
- Conditions
- Interstitial Lung Disease
- Registration Number
- NCT05445817
- Lead Sponsor
- Pulmonary Care and Research Collaborative Limited
- Brief Summary
The purpose of this research study is to build and maintain a registry of people with interstitial lung disease (ILD). Medical information collected for this registry may be used to advance ILD and pulmonary research and improve patient care. This is an observational registry. Participants will not receive any investigational treatments or investigational drugs as part of their participation in this registry.
- Detailed Description
The registry will contain longitudinal medical histories of ILD patients. The creation and curation of the registry with utilize release of information services, biomedical informatics methods and human expert reviews. Among the registry's long-term goals is to utilize its data and informatics resources to study and advance ILD diagnosis and treatment. The registry will be developed with a set of capabilities to consistently, repeatedly, and economically build research-grade datasets that allow cohort development from natively unstructured and non-standard phenotypic clinical and imaging data.
Recruitment & Eligibility
- Status
- UNKNOWN
- Sex
- All
- Target Recruitment
- 150
- People with a confirmed diagnosis of interstitial lung disease by a primary care physician and/or pulmonologist.
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Development and implementation of a database populated with de-identified longitudinal medical histories of interstitial lung disease patients. Up to 18 months
- Secondary Outcome Measures
Name Time Method Advancing the understanding of the natural course and the treatments of interstitial lung diseases. Up to 18 months
Trial Locations
- Locations (1)
Pulmonary Care and Research Collaborative, Ltd.
🇺🇸Boston, Massachusetts, United States