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The Living Experience of Hong Kong Chinese Adolescents With CHD.

Completed
Conditions
Quality of Life
Congenital Heart Disease
Chinese
Adolescent
Psychological Well-being
Registration Number
NCT03677232
Lead Sponsor
The University of Hong Kong
Brief Summary

This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD.

Hong Kong Chinese adolescents with CHD are having reduced psychological well-being and quality of life than their healthy counterparts. Qualitative study is therefore needed to explore how CHD may impact on the adolescents' psychological well-being and quality of life.

Detailed Description

A qualitative study was adopted. Purposive sampling of 30 adolescents with CHD were done. Thematic analysis was used for data analysis. The participants unfold negative impacts of CHD and its treatments, and the challenges they were facing with their relationship with others.

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
30
Inclusion Criteria
  • Hong Kong Chinese adolescents
  • aged 12 to 18
  • able to read and write Chinese
  • attending outpatient clinic of Department of Pediatric Cardiology
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Exclusion Criteria
  • adolescents with non-structural heart disease
  • with developmental delay or comorbid medical conditions
Read More

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
living experience of adolescents with CHD1 day

Participants were asked to describe their living experiences with CHD and how has CHD affected their quality of life and psychological well-being during the semi-structure interview.

Secondary Outcome Measures
NameTimeMethod

Trial Locations

Locations (1)

University of Hong Kong

🇭🇰

Hong Kong, Hong Kong

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